The National Niemann-Pick Disease Foundation supports and promotes research to find treatments and a cure for all types of Niemann-Pick Disease, and we provide support services for individuals and families affected by NPD. Our Vision...is a world where Niemann-Pick Disease is no longer a threat to a full and productive life for patients and their families.
A message from Barb Vorpahl, NNPDF Chair (click here)
October is
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See how your family can get involved! |
research! We can help you get
started, with ideas, resources
and support.
Contact NNPDF for more information.
Expression
of Hope is a global program featuring works of art by the community
touched by lysosomal storage disorders (LSDs). Our vision is
that those who experience this art will be inspired and moved by
the powerful expressions of human spirit which the pieces will reveal.
Featured Links:
Niemann-Pick Disease Featured on CBS National News |
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 Mark and Darrile Papier with their son, Dillon (NPC ~ age 6) |
Niemann-Pick Disease was the subject of a CBS News segment which aired earlier this year, featuring the Papier family of Frederick, Maryland. Mark and Darrile Papier are the parents of Dillon, age 6, who is affected by Niemann-Pick Type C. The Papiers are members of the NNPDF, and Darrile recently joined the Foundation’s Board of Directors. Click here to view the CBS News segment Read more about Dillon Papier and the Papier family's ongoing efforts toward funding of research into a treatment for Niemann-Pick Type C Disease. |
State Budget Cuts Threaten Care for Young Girl with NPC -- Jessica Leoni and Family Featured on CNN |
Foundation News:
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Research News & Announcements:
Family Resources & Support:
“The National Niemann-Pick Disease Foundation (NNPDF) does not engage in the practice of medicine. It is not a medical authority nor does it claim to have medical knowledge. This site is an educational service of the National Niemann-Pick Disease Foundation and is not meant to provide diagnostic or treatment advice. Information contained or suggested on this Web site does not constitute medical advice. For all information related to care, medication or treatment, the NNPDF recommends consulting a physician to determine if information presented is applicable. Please review these additional cautions about medical information provided on the Internet.”
This site does not host or receive funding from advertising or from the display of commercial content.
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The National Niemann-Pick Disease Foundation is a 501(c)(3) organization. Your donations are fully tax-deductible.
| Web Site updated 8/20/09 |
This
site complies with the HONcode
standard for trustworthy health information:
verify
here.