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[HealthLiteracy 2269] Re: CAUTION in printing out Medline tutorials!

Janet Sorensen

Jsorensen at afmc.org
Tue Aug 26 12:44:50 EDT 2008


All good points. Depending on a readability formula is never a good idea
-- it's just a tool and has to be used correctly.

As a writer, I can't do much about staffing or time -- but we do these
publications for doctors to hand out, to encourage patient/provider
communication, not to replace it. They are free for Arkansas physicians
to order or download, and they do order them. We do not distribute them
directly to patients because that is not our role according to our state
and federal contracts. To date, we've distributed more than 9 million
patient and provider tools statewide, and the vast majority were
specifically requested by physicians.

I've seen our publications littering the hallways myself. But
fortunately I've also seen them in patients' hands. Physician feedback
on our tools is mostly positive. I wish I could do more of them and
spend more time testing them to make them as effective as possible --
but we are usually rushed too.

This may not be a popular opinion, but to me "health literacy" is not
the biggest problem. It's health communication -- or a lack of it.
Effective communication is hard under the best of circumstances. Doctors
have their hands full, so we just try to make it a little bit easier as
one small part of our mission to improve health and health care. Maybe
I'm wrong, but I'd like to think I'm making a small difference in my own
way. I may not be adding much to this listserve, as I'm not involved
directly in health literacy research, but I've learned a lot by hanging
out with you all.

Thank you!
Janet Sorensen, Writer
Arkansas Foundation for Medical Care
-----Original Message-----
From: healthliteracy-bounces at nifl.gov
[mailto:healthliteracy-bounces at nifl.gov] On Behalf Of Cheryl Pasternack
Sent: Tuesday, August 26, 2008 8:13 AM
To: The Health and Literacy Discussion List
Subject: [HealthLiteracy 2265] Re: CAUTION in printing out Medline
tutorials!

The issue is not so much "readability", but knowing whether the patient
understands the material. You can write a paragraph with one and
two-syllable words that have no meaning when put together, and they will
come up as having a low reading grade, but will be completely not
understandable.

Handing out brochures without reinforcing the content is often
meaningless. How many handouts do you find littering the hallways and
stairwells? Having patients teach back what they are reading or what is
being explained is the goal. The problem is having adequate staffing
and time to accomplish this.



Cheryl Pasternack, CHES
Director, Grants Management
Lincoln Medical & Mental Health Center
234 E. 149th Street, Room 4C-162
Bronx, NY 10451
Email: Cheryl.Pasternack at nychhc.org
Phone: (718) 579-5697
Fax: (718) 579-4602




>>> "Janet Sorensen" <Jsorensen at afmc.org> 8/25/2008 6:06 PM >>>

I'm glad to see this discussion and hope to learn from it. I've always
assumed that a person with diabetes will be familiar with the word, and
so I admit I haven't always counted it as a three-syllable word in doing
readability formulas. But some words are unavoidable and probably
unfamiliar to the audience.

Case in point: We're currently drafting materials for Arkansans who are
on Medicaid and have sickle cell disease, to let them know about a
medicine that may be helpful, particularly in severe cases, in
preventing painful episodes and reducing the need for transfusions. A
poster will encourage them to ask their doctor about it, and a brochure
will give physicians something to hand out to patients to improve
communication about this rather harsh but potentially helpful drug.

The name of the drug is hydroxyurea. So far, I'm putting the
pronunciation key after the drug name on first reference.

Janet Sorensen, Writer
Arkansas Foundation for Medical Care

-----Original Message-----
From: healthliteracy-bounces at nifl.gov
[mailto:healthliteracy-bounces at nifl.gov] On Behalf Of Nielsen, Lynn
Sent: Monday, August 25, 2008 10:41 AM
To: The Health and Literacy Discussion List
Subject: [HealthLiteracy 2262] Re: CAUTION in printing out Medline
tutorials!

"And I think we all agree that medical terms are necessary and also
important to include in some written materials."

They are, and you raise excellent points. I want to add that while
medical terms may be necessary, it is also necessary to restate medical
terms in commonly used words.



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