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The Resource Room is a place where families can find educational materials
designed to meet their informational needs. Articles submitted for publication
in this section are reviewed for accuracy and relevancy by members of our
Advisory Panel. In addition, parent volunteers
are asked to preview these materials to ensure that the language used will
be understandable for our readers.
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- Arrhythmias
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- Transtelephonic Cardiac Event Recording
for Arrhythmia Surveillance
Written by: Elizabeth Charuvastra, RN
- Defects/Syndromes
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- Atrial Septal Defects: Surgical and Transcatheter
Management
Written by: Lucian A. Durham, III, M.D., Ph.D.
Alan M. Mendelsohn, M.D.
- Patent Ductus Arteriosus (PDA): A Parent's
Guide
Written by: Robert J. Sommer, M.D.
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- Protein-Losing Enteropathy After the Fontan
Operation
Written by: Jack Rychik, M.D.
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- Dictionaries
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- Glossary of Childhood Onset Heart Disease
- Written
by: William B. Moskowitz, M.D.
Robert J. Sommer, M.D.
Alan Tong, M.D.
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Gil Wernovsky, M.D.
- For Professionals
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- Internet Resources: Parent and Patient Perspective
- Written by: Mona Barmash
- Genetics
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- A View of Congenital Heart Defect Research
by a Basic Scientist
Written by: Raymond Runyan, Ph.D.
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- Velocardiofacial Syndrome
- Written by: Rosalie Goldberg, M.S., C.G.C.
Interventional Procedures
Pulmonic Stenosis and Balloon Valvuloplasty
Written by: Alan Tong, M.D.
- Parenting
- The Emerging Recognition of School and
Behavior Problems in Children with Congenital Heart Defects
Written by: Gil Wernovsky, MD
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- Medical Decision Making: Informed Consent
in Pediatrics and Pediatric Research
Written by: Beth Newbury Whitstone, RN, BSN
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- Play Activities
for Hospitalized Children
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- Musical Ideas for Hospital Stays
Written by: Laurie Smith, BMT, MTA
- Question and Answer Sessions
Questions and Answers with Stuart Berger, M.D.
Sudden Cardiac Death
- Parents and ACHD'ers Speak Out: Using the Internet
for Health Information and Support
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- Questions and Answers with William B, Moskowitz,
M.D.
Topics: Embolisms; Cardiac Catheterization; Heart Transplantation; Coarctation
of the Aorta; Cardiomyopathy; CT Scans; Shones Complex; ASD Closure Devices;
Endocardial Fibroelastosis; Pulmonary Valves.
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- ACHD CHAT with Richard Donner, M.D.
- Topics: Ablation; Atrial Arrhythmias; Coarctation Repair; Eisenmenger's
Syndrome; Hemoptysis; Nose Bleeds; Pulmonary hypertension in TOF; Scoliosis;
Valve Replacement
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- Open CHAT with Alan D. Tong, M.D., FACC, and
Benjamin Zeevi, M.D.
- Topics: Fontan; General Anesthesia; MRI; Transplants; Truncus IV;
Unifocalization; VSD Closure
- Questions and Answers with Gil Wernovsky, M.D.
- Topic: Developmental Delay/Learning Disabilities
- Questions and Answers with Thomas Di Sessa,
M.D.
- Topics: Pregnancy; Echocardiography; Fontan
- Parents and ACHD'ers Speak Out!
- Questions and Answers with Mary Cannobio, RN,
MN, FAAN
- Topic: Gynecologic/Reproductive Issues in Congenital Heart Disease
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