Xeroderma Pigmentosum (XP) Family Support Group - XPFSG
Organization URL(s)
contact@xpfamilysupport.orgwww.xpfamilysupport.org/index.cfm
Other Contact Information
3006 Notre Dame Drive
Sacramento,
CA 95826
(916) 628-3814 (Voice)
Description
The Xeroderma Pigmentosum (XP) Family Support group is dedicated to improving the quality of life of those affected with xeroderma pigmentosum through education and support services, researching effective treatments, and ultimately finding a cure.
Online Resources
- Understanding UV: Xeroderma Pigmentosum (XP)
http://www.xpfamilysupport.org/content.cfm?id=2006