HomeHealth Genetic and Rare Diseases Information Center

Genetic and Rare Diseases Information Center

The Genetic and Rare Diseases Information Center (GARD) employs experienced information specialists to answer questions in English and Spanish from the general public, including patients and their families, health care professionals and biomedical researchers. It was established by the National Human Genome Research Institute (NHGRI) and the Office of Rare Diseases Research (ORDR).

Go to the Genetic and Rare Diseases Information Center [rarediseases.info.nih.gov]
Visit the new Genetic and Rare Diseases Information Center on the Office of Rare Diseases Research Web site.

How to Contact a GARD Information Specialist

GARD Information for the Public

• About the Genetic and Rare Diseases Information Center (GARD)
  Background information on GARD.

• Specific Genetic Disorders
  Information on over 20 specific genetic disorders, including Charcot-Marie-Tooth, Huntington's, Parkinson's, Progeria and Tay-Sachs.
  
  
• NIH Research Results for the Public
  Fact sheets from the National Institutes of Health created to help you learn more about how NIH is pursuing its goal to make important medical discoveries that improve health and save lives.
  
  
• Finding Reliable Health Information Online
  Tips for finding accurate and reliable online information on genetic and rare diseases
  
  
• Financial Assistance Information
  Resources for finding information on financial aid for medical treatment.
  
  
• Office of Rare Diseases Research (ORDR) [rarediseases.info.nih.gov]
  The National Institutes of Health Office of Rare Diseases Research partners with NHGRI in providing information through the Genetic and Rare Diseases Information Center.
  
  

Note: The GARD Information Center does not provide genetic counseling and does not offer diagnostic testing, referrals, medical treatment or advice.

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GARD Information for Health Professionals

• About the Genetic and Rare Diseases Information Center (GARD)
  Background information on GARD.

• GARD Article and Sidebar for Health-Care Professionals' Newsletters
  A feature article and information sidebar designed for use in newsletters by health-care professionals. Describes the free services that GARD offers and lists GARD contact information.
  
  

• Printed Resource Materials for Health Professionals
  
  Order the "GARD Information Center Brochure" and the "About GARD Card,"
  professionally produced materials that describe the assistance offered by GARD.
  
  
  
  
  
  

• Specific Genetic Disorders
  Information on 26 specific genetic disorders, including Charcot-Marie-Tooth, Huntington's, Parkinson's, Progeria and Tay-Sachs
  
  
• Office of Rare Diseases Research (ORDR) [rarediseases.info.nih.gov]
  The National Institutes of Health Office of Rare Diseases Research partners with NHGRI in providing information through the Genetic and Rare Diseases Information Center.
  
  

Note: The GARD Information Center does not provide genetic counseling and does not offer diagnostic testing, referrals, medical treatment or advice.

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Last Updated: July 27, 2009