[NIFL-HEALTH:4138] RE: Looking for volunteer CD reviewers

From: Johnston-Lloyd, Linda (HRSA) (LJohnston-Lloyd@hrsa.gov)
Date: Mon Sep 22 2003 - 15:47:38 EDT


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From: "Johnston-Lloyd, Linda (HRSA)" <LJohnston-Lloyd@hrsa.gov>
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Subject: [NIFL-HEALTH:4138] RE: Looking for volunteer CD reviewers
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I would.... in English.

Linda Johnston Lloyd, Public Health Advisor
HRSA Center for Quality and Office of the Chief Medical Officer
Room 7-100 Parklawn Building
5600 Fishers Lane
Rockville, MD 20857
301-443-0831
Fax 301-443-9795

"The First Wealth is Health"
Ralph Waldo Emerson 



-----Original Message-----
From: Martha Burton Santibáñez [mailto:mburton@nmdp.org] 
Sent: Thursday, September 18, 2003 2:41 PM
To: Multiple recipients of list
Subject: [NIFL-HEALTH:4129] Looking for volunteer CD reviewers


Hello everyone!

I have (yet another) request of fellow listserv members...  My colleagues
and I developed a bilingual (English/Spanish) audio CD this year, that
provides basic information about unrelated blood stem cell transplants for
patients who are considering the procedure(s) as a treatment option.

We intended the CD to be a useful resource for patients and family members
who:
- Have limited literacy
- Prefer to learn by listening
- Speak Spanish as a preferred language, or
- Are English language-learners

We printed and distributed 2,000 CDs as a pilot project.  We've already sent
out evaluations to staff at transplant centers and migrant health clinics
throughout the country and feedback has been very positive.  We would like
to add another dimension to our evaluation process, by having it reviewed
from a health literacy/accessible language perspective.  Our hope is to
refine the product before we print more, or add more languages.

Each language is about 15-20 minutes long and is accompanied by a pull-out
insert.  If you are interested in having a listen about a medical treatment
that is probably unfamiliar to you, please call (612) 617-8336 or email me
privately and I'll happily send you a packet to review.  Unfortunately, I
have a limited number of CDs left, so it will be on a first-come,
first-served basis.

Many thanks,

Martha Burton Santibanez
Outreach Specialist, National Marrow Donor Program
(612) 617-8336
mburton@nmdp.org



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