[NIFL-HEALTH:3991] RE: New research on use of medical v lay language

From: Debbie Yoho (dwyoho@earthlink.net)
Date: Fri May 23 2003 - 13:03:35 EDT


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From: "Debbie Yoho" <dwyoho@earthlink.net>
To: Multiple recipients of list <nifl-health@literacy.nifl.gov>
Subject: [NIFL-HEALTH:3991] RE: New research on use of medical v lay language
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Cynthia, thank you for this fascinating reference.  My comment is:  This
just goes to show the complexity of health communications.  When attempting
to improve communication, this is an example about how "dumbing down"
language or relying solely on lowering the reading level of materials can
lead to many other problems.  I notice in our literacy practice that it is
almost a point of pride to say "I have diabetes" as opposed to "I got
sugar".  Debbie

Deborah W. Yoho
Co-moderator, NIFL-Health Listserv
President, SC Adult Literacy Educators
Executive Director, Greater Columbia Literacy Council
2728 Devine Street,  Columbia, SC  29205
803-765-2555   Fax  803-779-8417   dwyoho@earthlink.net


> [Original Message]
> From: Linda S. Potter <lspotter@att.net>
> To: Multiple recipients of list <nifl-health@literacy.nifl.gov>
> Date: 5/23/2003 9:40:57 AM
> Subject: [NIFL-HEALTH:3989] RE: New research on use of medical v lay
language
>
> In fieldtesting the patient package inserts for various contraceptives,
> we've been finding that most of the women interviewed preferred having
both
> terms. They also tended to recognize the medical names for any diseases
they
> themselves had that might contraindicate their using a particular method.
>
> In general the women preferred seeing the lay term first, then the medical
> term. Some did not recognize parentheses or that the term in parentheses
> meant the same as the lay term so "high blood pressure (hypertension)" did
> not work as well as "high blood pressure (or hypertension)"  Still using
the
> parentheses with the "or" seemed to make it clearer to the reader that the
> medical term referred to the lay term and was not a separate condition.
>
> Data collection:  We have always used 2-3 focus groups with providers,
then
> patients, and used their responses to revise the insert, then used "teach
> back" in one-on-one interviews (n=75-100). This fieldtesting has been with
> women patients between the ages of 18-44 in publically-funded family
> planning clinics, so our somewhat tentative conclusions cannot necessarily
> be generalized to other categories of patients or conditions. They may be
a
> good starting place though.
>
>
>
> ********************************
> Linda S. Potter, DrPH
> Family Health Research
> 56 N. Mill Road
> Princeton Junction, NJ 08550
> tel:  609-716-6365
> fax:  609-716-4972
> email:  lspotter@att.net
> ********************************
>
> -----Original Message-----
> From: nifl-health@nifl.gov [mailto:nifl-health@nifl.gov]On Behalf Of
> Baur, Cynthia
> Sent: Friday, May 23, 2003 9:47 AM
> To: Multiple recipients of list
> Subject: [NIFL-HEALTH:3987] New research on use of medical v lay
> language
>
>
> I am very interested in the list's reaction to a new research study
> published in the journal "Family Practice." I have pasted in the URL and
> abstract below (tip: for wrap around URLs', you have to copy and paste
each
> line separately into your browser). The full text is free online. The
sound
> bite is that patients may prefer medical to lay language because the
medical
> language provides a range of "benefits," of which understanding is only
one
> consideration. Although the authors don't say this, maybe patients want
both
> medical and lay language - one for legitimacy and the other for
> understanding. These findings would seem to have a direct relation to our
> work on health literacy and provider-patient communication. Comments on
the
> findings?
>
> Cynthia Baur
> HHS
>
>
http://fampra.oupjournals.org/cgi/content/abstract/20/3/248?ijkey=4f2e459105
> 82d511afa316074e04cd0bd4be321a
>
> Family Practice Vol. 20, No. 3, 248-253
>
> What's in a name? An experimental study of patients' views of the impact
and
> function of a diagnosis
>
> Jane Ogden, Ruben Branson, Annie Bryett, Amaryllis Campbell, Alberto
Febles,
> Ian Ferguson, Hilary Lavender, Jacques Mizan, Robin Simpson and Michael
> Tayler
> Department of General Practice, Guys Kings and St Thomas's School of
> Medicine, Kings College London, London, UK.
>
> Correspondence to: Correspondence to Jane Ogden, Department of General
> Practice, GKT, 5 Lambeth Walk, London SE11 6SP, UK; E-mail:
> Jane.Ogden@kcl.ac.uk
>
> Objective. The aim of the present study was to examine patients' views
about
> the relative impact and function of lay and medical diagnoses for stomach
> and throat problems.
>
> Methods. A questionnaire survey was carried out among 900 consecutive
> patients attending nine general practices across England. A total of 740
> questionnaires were completed (response rate: 82.2%). Each participant
rated
> a series of statements describing the impact upon the patient and the
> function for the doctor following both a stomach and a throat problem case
> scenario involving either a lay (stomach upset/sore throat) or medical
> (gastroenteritis/tonsillitis) label.
>
> Results. The results showed consistent differences between the lay and
> medical labels for both stomach and throat problems in terms of their
impact
> upon the patient and their function for the doctor. In particular, the
> medical labels were rated as beneficial for the patient in terms of
> validating the sick role and improving their confidence in the doctor. In
> contrast, the lay labels resulted in a greater sense of ownership of the
> problem which could be associated with unwanted responsibility and blame.
In
> addition, the medical labels were seen to provide the doctor with a
greater
> sense of professionalism, as giving them a clearer role in the
consultation
> and to imply less blame on the part of the patient. 'Stomach upset' was
also
> seen as a more pragmatic label than 'gastroenteritis'.
>
> Conclusion. Although much current prescriptive literature in general
> practice advocates the use of lay language in the consultation as a means
to
> promote better doctor-patient partnerships, the issue of diagnosis is more
> complex than this. Patients attribute greater benefits to the use of
medical
> labels for themselves and state that such medical labels are of greater
> benefit to the doctor.
>
> Keywords. Diagnosis, doctor, patient communication, general practice,
> language.
>
>
>
>
>



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