The Noonan Syndrome Support Group

Our Mission

The Noonan Syndrome Support Group, Inc. is committed to providing support, current information, and understanding to those affected by Noonan syndrome.
It is also our goal to raise the awareness of, and educate the medical community as to the complex nature of this syndrome and how it affects the lives of those who have it.

With the help of our members from around the world we hope to be able to provide further research into the areas of symptoms, diagnosis, treatment and outcomes related to Noonan syndrome.

Community Section

We have added a new community section where members can meet other members, discuss important topics and share in all of our amazing stories.
==> Log In
==> Request Membership

Talk to Others

We operate a list service (discussion forum). If you would like to subscribe, and be a part of our family, send an e-mail to listserv@home.ease.lsoft.com with only the following command in the message body:
subscribe noonan-syndrome

TNSSG Conference

will be held August 2-4, 2009 at the Doubletree Berkeley Marina in Berkeley, California USA.

You can register online here

OR Registration Packet and information 2009 TNSSG International Conference meeting information (PDF file)4-10-09nsregistrationvs101 The Noonan syndrome Support Group, Inc. (TNSSG) International Conference is a unique learning opportunity for families and professionals to connect throughout the three-day program. The program offers keynote speakers who are experts in their fields, workshops tailored to connect families with others of similar experiences, individual consultations with International Medical experts, and childcare programs for children of all ages! The Doubletree Hotel & Executive Meeting Center at the Berkeley Marina overlooks the San Francisco Bay. The hotel is located 20 minutes from Oakland International Airport, 30 minutes from San Francisco International Airport and convenient to all major highways.

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