Privacy and Security Notice
Of the information we learn about you from your visit to the ORDR
Web site, we store only the domain name from which you access the
Internet (such as www.aol.com), the date and time you access our
site, and the Internet address of the Web site from which you linked
to our site. This information is used to measure the number of
visitors to the various sections of our site and to help us make our
site more useful to visitors. We do not attempt to associate this
information with individual users. Unless we specifically state
otherwise, no additional information will be collected about you.
When inquiries are e-mailed to us, we store the question and the
e-mail address so we can respond or refer the question to the Genetic and Rare Diseases Information
Center. In response to questions on rare cancers, we refer to
the National Cancer Institute's Cancer Information Service (CIS)
toll free at (800) 4-CANCER. Unless otherwise required by statute,
we do not publicly identify who sends questions or comments to our
Web site. We will not obtain information that will allow us to
personally identify you when you visit our site, unless you chose to
provide such information to us. If you choose to provide us with
personal information, this information will not be released,
disclosed, sold, or transferred to any outside source unless
required for law enforcement or by statute.
E-mail sent to ORDR may be seen by a number of people who are
responsible for answering questions. If the ORDR staff person who
answers the e-mail or the information specialist of the Genetic and Rare Diseases Information
Center does not know the answer to your question, your query may
be forwarded to another employee of the NIH or the Genetic and Rare Diseases Information
Center who is more knowledgeable in that area. On occasion, we
may conduct a study concerning the types of questions sent to us.
These studies may involve coding the queries to see if there are
recurring problems that users have in finding information. The
knowledge gained by these studies is used to improve our Web site to
make it more responsive to the needs of its users. We do not collect
your name and e-mail address for any purpose other than to respond
to your query. Nevertheless, you should be aware that e-mail is not
necessarily secure against interception by others. If your
communication contains sensitive or personal information, you may
want to send it by postal mail or relate it by telephone.
Persistent Cookies
In the near future, this site will run customer satisfaction
surveys that employ persistent cookies. Participation in this data
collection effort is completely voluntary, and failure to respond
will in no way affect the visitor's ability to access information.
This information will be used by ORDR solely for the purpose of
improving our public Web site. More information is
available on this use of persistent cookies.
Intrusion Detection
This site is supported by the U.S. Government. It is protected by
various provisions of Title 18, U.S. Code. Violations of Title 18
are subject to criminal prosecution in Federal court.
For site security purposes and to ensure that this service
remains available to all users, we may employ software programs to
identify unauthorized attempts to upload or change information, or
otherwise cause damage. In the event of authorized law enforcement
investigations, and pursuant to any required legal process,
information from these sources may be used to help identify an
individual.
Questions about NIH privacy policies should be sent to the NIH Office of the Senior Official for Privacy.
Last Reviewed: February 6, 2009
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