Policy Briefs & Research Reports
 

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Click on a the links below to see publications under that heading.

State-by-State Caregiver Statistics

Consumer Guides and Toolkits

Research and Policy Studies

Policy and Advocacy

Policy Briefs

Other Publications by FCA Staff

Monographs

Teleconference Archives

 

State-by-State Caregiver Statistics

State Program Information: State Profiles (Updated November 2007)

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Research and Policy Studies

Proceedings from National Conference: Family Caregiving: State of the Art, Future Trends

National Consensus Report on Caregiver Assessment Vol. I

National Consensus Report on Caregiver Assessment Vol. II

States of the States in Family Caregiver Support: A 50-State Study

Find Programs in Your State

Survey of Californians About In-Home Care Services (March 2003)

Family Caregiver Support: Policies, Perceptions and Practices in 10 States Since Passage of the National Family Caregiver Support Program (November 2002)

Family Caregiving as a Grantmaking Area: Current Focus and Future Trends (July 2002)

2001 Conference Proceedings: Who Will Provide Care? Emerging Issues for State Policymakers (2001)

Making Hard Choices: Respecting Both Voices (May 2000)

Family Caregivers: Partners in Long Term Care (2000)

Survey of 15 States' Caregiver Support Programs: Final Report (October 1999)

Report on Family Caregiver Support in California's Publicly Funded Programs (April 1999)

Options for Supporting Informal and Family Caregiving: A Policy Paper (August 1997)

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Policy Briefs

Caregivers at Risk: A Public Health Concern (2007)

Support for Working Family Caregivers: Paid Leave Policies in California and Beyond (2006)

Consumer-Directed Home Care: Effects on Family Caregivers (October 2004)

Family Caregiving and Long-Term Care: A Crucial Issue for America's Families (June 2004)

Caregiving and Retirement Planning: What Happens to Family Caregivers Who Leave the Work Force (December 2003)

The Road to Recognition: An International Review of Public Policies to Support Family and Informal Caregiving (September 2003)

Paid Family & Medical Leave: Why We Need It, How We Can Get It (September 2003)

Caregiver Depression: A Growing Mental Health Concern (September 2003)

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Monographs

Cultural Competency in Working with Latino Family Caregivers (2004) 

Navigating the Care System: A Guide for Providers to Help Family Caregivers (2004)

Practical Skills Training for Family Caregivers (2003)

Workplace Programs for Family Caregivers: Good Business and Good Practice (2003)

Lesbian, Gay, Bisexual and Transgender (LGBT) Issues and Family Caregiving (2003)

Insuring Your Future: What Caregivers Need to Know About Long-Term Care (2002)

The State of the Art: Caregiver Assessment in Practice Settings (2002)

Selected Caregiver Assessment Measures: A Resource Inventory for Practitioners (2002)

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Consumer Guides and Toolkits

Emerging Practices and Tools for Professionals

Practical Tools and Resources for Caregivers and Professionals

Caregivers Count Too! A Toolkit to Help Practitioners Assess the Needs of Family Caregivers

Handbook for Long-Distance Caregivers

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Policy and Advocacy

FCA 2009 National Policy Statement

Advocacy Tips for Family Caregivers

Contacting Elected Officials

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Other Publications by FCA Staff

Ahead of the Curve: Emerging Trends and Practices in Family Caregiver Support

Issue Brief: Aged/Disabled Medicaid HCBS Waiver Programs and Family Caregiving

State Policy in Practice: Consumer Direction and Family Caregiving: Results from a National Survey

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Teleconference Archives

National Center on Caregiving Teleconference Seminars

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Caregiving Fact: Caregiving is the backbone of the American long-term care system: the value of the services provided by informal caregivers (family or friends of seriously ill loved ones) is estimated at $306 billion annually. See FCA's Policy Brief, Caregiving and Retirement Planning, for more information.
  Public Policy & Research
National Center on Caregiving
NEW! Family Care Navigator: State-by-State Guide
Policy Symposium 2009
Caregiving Across the States: Publically Funded Programs (2004)
Policy Briefs & Research Reports
  2009 National Policy Statement
Federal and State Caregiving Legislation
Caregiving PolicyDigest
Caregiving Legacy Awards
  2008 Awardees - Awards Ceremony
  2008 Awardees - The Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards
  2008 Application
  Frequently Asked Questions (FAQ)
Family Caregiving: Emerging Practices & Tools for Professionals
  Promising and Innovative Programs across the US
  Practical Tools & Resources
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