Metachromatic Leukodystrophy Organizations

The Arc of the United States 1010 Wayne Avenue Suite 650 Silver Spring, MD   20910 Info@thearc.org http://www.thearc.org Tel: 301-565-3842 Fax: 301-565-3843 or -5342	Myelin Project 1400 Wallace Blvd. Suite 258 Amarillo, TX   79106 candace.root@myelin.org http://www.myelin.org Tel: 806-356-4693 800-869-3546 Fax: 806-356-4694
National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT   06813-1968 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291	National Tay-Sachs and Allied Diseases Association 2001 Beacon Street Suite 204 Brighton, MA   02135 info@ntsad.org http://www.ntsad.org Tel: 617-277-4463 800-90-NTSAD (906-8723) Fax: 617-277-0134
United Leukodystrophy Foundation 2304 Highland Drive Sycamore, IL   60178 office@ulf.org http://www.ulf.org Tel: 815-895-3211 800-728-5483 Fax: 815-895-2432