President's Committee for People with Intellectual Disabilities

PCPID Publications, 1967-2009

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THE PRESIDENT’S COMMITTEE
FOR PEOPLE WITH INTELLECTUAL DISABILITIES
(PCPID)

PUBLICATIONS

MARCH, 2009

Copies of publications cited in this document may be obtained, at no cost, from the
Government Printing Office (GPO). Fax request to 301-317-5897

Printable PDF version (77kb)

PCPID Publications

I. **Archived PCPID Reports to the President**
SEQUENCE	YEAR	TITLE
1	1967	*A 1st Report to the President on the Nation’s Progress and Remaining Great Needs in the Campaign to Combat Mental Retardation*
2	1968	MR 68: The Edge of Change A REPORT TO THE PRESIDENT ON MENTAL RETARDATION PROGRAM TRENDS AND INNOVATIONS, WITH RECOMMENDATIONS ON RESIDENTIAL CARE, MANPOWER, AND DEPRIVATION
3	1969	MR 69: TOWARD PROGRESS: The Story of a Decade A third report by the President’s Committee on Mental Retardation about developments in the national campaign to overcome mental retardation
4	1970	MR 70: The President’s Committee on Mental Retardation *THE DECISIVE DECADE*
5	1971	MR 71: Entering the Era of Human Ecology
6	1972	MR 72: ISLANDS OF EXCELLENCE *Report of the President’s Committee on Mental* *Retardation* & 1972 Citizen Advocacy THE PRESIDENT’S COMMITTEE ON MENTAL RETARDATION
7	1973	MR 73: THE GOAL IS FREEDOM
8	1974	MR 74: A FRIEND IN WASHINGTON REPORT OF THE PRESIDENT’S COMMITTEE ON MENTAL RETARDATION
9	1975	*MENTAL RETARDATION* *…the known and the unknown* CENTURY OF DECISION SERIES YEAR2000 & 1975 THE PROBLEM IS GROWING: What Are We Waiting For?
10	1976	MR 76: MENTAL RETARDATION PAST AND PRESENT CENTURY OF DECISION SERIES YEAR 2000
11	1978	MR 78: *Report To The President* *Mental Retardation: The Leading Edge* Service Programs That Work
12	1979	MR 79: MENTAL RETARDATION STRATEGIES THAT *WORK* The President’s Committee on Mental Retardation U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES
13	1980	*REPORT TO THE PRESIDENT* *MENTAL RETARDATION: PREVENTION STRATEGIES THAT WORK*
14	1983	*Report to the President* *The Mentally Retarded Worker an Economic Di$covery*
15	1985	MENTAL RETARDATION PLANS FOR THE FUTURE: PUBLIC AWARENESS / PREVENTION / FAMILY AND COMMUNITY SERVICE / SYSTEMS SIMPLIFICATION / FULL CITIZENSHIP / INTERNATIONAL ACTIVITIES
16	1986	Report to the President CITIZENS WITH MENTAL RETARDATION EQUALITY UNDER THE LAW & President’s Committee on Mental Retardation: A Historical Review 1996-1986
17	1987	The President’s Committee on Mental Retardation - 1987 REPORT TO THE PRESIDENT The President’s Committee on Mental Retardation 20th Anniversary Symposium The National Strategy Conference on Mental Retardation and Mental Health The National Conference on State Planning for the Prevention and Related Developmental Disabilities
18	1989	A Presidential Forum: Citizens with Mental Retardation and Community Integration Forum Proceedings February 3-5, 1989, Washington, DC
19	1991	Report to the President Citizens with Mental Retardation and the Criminal Justice System
20	1993	Report to the President The National Effort to Prevent Retardation and Related Developmental Disabilities
21	1994	A Journey of Renewal for All Americans: Report to the President
22	1995	President’s Committee on Mental Retardation Collaborating for Inclusion
23	1996	Voices and Visions: *Building Leadership for the 21st Century*
24	1998	A Better Place: *The Contributions of Americans with Mental Retardation to Our Nation’s Workforce*
25	1999	The Forgotten Generation
26	2004	A CHARGE WE HAVE TO KEEP A Road Map to Personal and Economic Freedom for Persons with Intellectual Disabilities in the 21st Century

II. Recent Reports to the President (1998-2009)

Report to the President: Dignity Through Employment – 2009*

The 2009 Report to the President focuses on four basic areas: (1) promoting employment, (2) connecting people with intellectual disabilities to employers, (3) employment supports, and (4) financial planning for long-term self-sufficiency and asset accumulation. The report also discusses the role of research and public awareness in each of the four focus areas.

Report to the President: The Promise of Research and Prevention – 2008 *

The 2008 Report to the President addresses two issues of vital importance to preventing and ameliorating the effects of intellectual disabilities: (1) speeding the discovery of cutting edge treatments and services through translational research and research consortiums, and (2) defeating the single most preventable cause of intellectual disabilities—fetal alcohol spectrum disorders (FASD).

HOLDING TRUTHS TO BE SELF-EVIDENT: Affirming the Value of People with Intellectual Disabilities – 2007 *

The 2007 Report to the President promotes further understanding on the part of leading government officials, as well as lay Americans, of the inherent value of people with intellectual disabilities, and appropriate public policy which reflects this understanding.

KEEPING THE CHARGE – PERSONAL AND ECONOMIC FREEDOM FOR PEOPLE WITH INTELLECTUAL DISABILITIES – An Exploration of Asset Development for People with Intellectual Disabilities – 2006 *

The 2006 Report to the President emphasizes the point that most Americans with intellectual disabilities want jobs in order to earn an income, seek to open savings accounts, and desire to build assets for the purposes of continued education, a first home and/or investment in a micro enterprise business. For many people with intellectual disabilities, such opportunities rarely exist. Although citizens with intellectual disabilities desire the same kind of opportunities as all other Americans, most have been trapped into a life of continuing poverty and dependency with no mechanism to make their way on their own. This report highlights numerous areas of economic and financial challenges facing adults with intellectual disabilities. Although, no formal recommendations were submitted by the Committee with this report, the Committee encouraged further explanations on asset development.

* Unpublished

KEEPING THE CHARGE – Accessibility to Dental Care for People with Intellectual Disabilities – 2005 *

The 2005 Report to the President identifies the critical needs for dental health and oral hygiene for people with intellectual disabilities. A team of dental experts revealed to the Committee the prevalence of poor dental health and poor dental hygiene among prize athletes competing for Special Olympics. Dental health specialists reviewed the health records among a sample of citizens with intellectual disabilities and reported to the Committee that a critical situation existed affecting both general and dental health. With the assistance of dental experts, the Committee identified the issues and developed recommendations for the consideration of the President.

A CHARGE WE HAVE TO KEEP – A Road Map to Personal and Economic Freedom for Persons with Intellectual Disabilities in the 21st Century – 2004

The 2004 Report to the President consists of a series of issues and recommendations for the people with intellectual disabilities: (1) Public Awareness, (2) Performance Management, (3) Educational and Transition, (4) Employment and Asset Development, (5) Family Services and Supports, and (6) Assistive Technology and Information. In addition, the report provides a brief historical review of progress for citizens with disabilities in our nation, some current statistics and estimates covering important key areas of concern for people with disabilities, and a chart depicting a complex disability maze of Federal programs, emphasizing the many challenges that exist in obtaining services and supports for people with intellectual disabilities in our nation. The report includes a colorful, pictorial, companion booklet developed especially for family members and consumers with intellectual disabilities.

The Forgotten Generation - 1999

In 1969, the President’s Committee on Mental Retardation produced the landmark publication, The Six Hour Retarded Child, linking mild cognitive disabilities in typical-appearing children with conditions associated with poverty. Thirty years later, in 1999, the Committee revisited The Six Hour Retarded Child, to assess the lives of adults with mild cognitive disabilities living at the fringes of American society. “The Forgotten Generation Summit” convened 75 national experts, including adults with mental retardation, to examine the consequence of social failure to adequately support leading marginal lives. The deliberations of summit participants are reflected in this document, with many policy recommendations for the consideration of the President that members believe address some of the concerns expressed by participants.

A Better Place: The Contributions of Americans with Mental Retardation to our Nation’s Workforce – 1998.

The 1998 Report to the President offers recommendations to the nation regarding employment for citizens with mental retardation. The Report is the culmination of the 1998 PCMR Employment Summit and summarizes the concerns of summit participants and the PCMR participants and Committee regarding employment opportunities and barriers to employment for Americans with mental retardation. The Report is authored by John Kregel, Ed.D., professor of Special Education at Virginia Commonwealth University (VCU). Dr. Kregel is Director of Research and Associate Director of the VCU Rehabilitation Research and Training Center.

WITH A LITTLE HELP FROM MY FRIEND:

A 5-volume series on contemporary supports to people with mental retardation (1998). This series of five books provides timely, innovative and creative “possibilities” for people with mental retardation and related conditions to assure a full life in their community. Each book provides an extensive list of references/resources, glossary of terms and common acronyms.

Speaking Up-Speaking Out (Booklet #1): Provides definitions and prevalence of mental retardation, issues in the current legal system, self-advocacy and self-determination.
Growing Strong (Booklet #2): Addresses issues and topics in early intervention, family supports, and the educational system.
Real Lives (Booklet #3): Provides information about services and supports in the areas of supported living, vocational opportunities, and supported recreation.
I Am Who I Am (Booklet #4): Covers a variety of specialized support needs including challenging behaviors, supports to the aging, culturally competent supports, and person-centered planning.
Changing Systems (Booklet #5): Provides information regarding issues in quality assurance and funding of supports and services.

Note: Interested individuals organizations and/or agencies may order one, several or all of the volume in the series.

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