soundPublic meetings of the NCVHS are broadcast live on the Internet.

 

Tentative Agenda

NATIONAL COMMITTEE ON VITAL AND HEALTH STATISTICS

SUBCOMMITTEE ON PRIVACY, CONFIDENTIALITY, & SECURITY

Hearing on "Personal Health Records"

May 20 - 21, 2009
Hubert H. Humphrey Building, Room 800
200 Independence Ave, SW
Washington, D.C. 20201

June 9, 2009
National Center for Health Statistics, Auditorium
3311 Toledo Road
Hyattsville, MD 20782

 

 

  Wednesday, May 20, 2009  

9:00 - 9:15 a.m.

Introductions and Opening Remarks

Leslie P. Francis, Ph.D., J.D., Co-Chair
John P. Houston, J.D., Co-Chair

9:15 - 10:45 a.m.

Panel I: What Will Consumer-Facing Health IT Look Like in 5 or 10 Years?

Robert L. Coffield, J.D.
Flaherty, Sensabaugh & Bonasso, PLLC

Jane Sarasohn-Kahn, M.A, MHSA
THINK-Health

Daniel J. Weitzner, J.D., Policy Director
Technology and Society, World Wide Web Consortium

 
10:45 - 11:00 a.m. Break  
11:00 - 12:30 p.m.

Panel II: What Will Consumer-Facing Health IT Look Like in 5 or 10 Years? (Continued)

James Allen Heywood, Co-founder
and Chairman
PatientsLikeME

Don Mon, Ph.D., FHIMSS, Vice President of Practice Leadership
American Health Information Management Association

Carol Diamond, M.D., M.P.H., Managing Director
Markle Foundation, and Chair, Connecting for Health

- OR -

Josh Lemieux, Director of Personal Health Technology
Markle Foundation (author of Connecting for Health Framework paper)
(invited)

12:30 - 1:30 p.m. Lunch  
1:30 - 3:00 p.m. Panel III: PHRs Offered by Non-Provider/Plan Entities

Marc Donner, Ph.D., Director of Engineering
Google Health (accompanied by Pablo Chavez, D.C. policy team)

Colin Evans, Chief Executive Officer
Dossia (accompanied by Brian Huseman, Manager, Global Public Policy, Intel)

Philip Marshall, M.D., M.P.H., Vice President, Product Strategy
WebMD Health

Michael Stokes, Director of Policy and Compliance, Health Solutions Group
Microsoft Corporation
3:00 - 3:15 p.m. Break  
3:15 - 4:45 p.m. Statements from members of the public  
3:45 - 4:45 p.m. Discussion  
4:45 - 5:00 p.m. Administrative announcements and prepare for Day 2  
5:00 p.m. Recess until May 21  
     
  Thursday, May 21, 2009  
9:00 - 9:15 a.m. Introductions and Opening Remarks Leslie P. Francis, Ph.D., J.D., Co-Chair
John P. Houston, J.D., Co-Chair
9:15 - 10:45 a.m. Panel IV: Providers and PHRs

Matthew Wynia, M.D., M.P.H., Director of the Institute for Ethics
American Medical Association

Anna-Lisa Silvestri, M.P.H., VP Online Services
Kaiser Permanente HealthConnect

Veterans Administration
My Health eVet
(witnesses to be determined)

 
10:45 - 11:00 a.m. Break  
11:00 - 12:30 p.m.

Panel V: Plans and PHRs

 

Faye Dion, J.D.
Aetna (invited)

Arkansas Blue Cross Blue Shield (invited)

Joy Grossman and Teresa Zayas-Cabon, Senior Health Researchers
Center for Studying Health System Change
12:30 - 12:50 p.m. Lunch Break  
12:50 - 2:00 p.m. Working Lunch/Discussion  
2:00 p.m. Recess until June 9, 2009  
     
  Tuesday, June 9, 2009  
9:00 - 9:15 a.m. Introductions and Opening Remarks Leslie P. Francis, Ph.D., J.D., Co-Chair
John P. Houston, J.D., Co-Chair
9:15 - 10:45 a.m. Panel VI: Federal Demonstration Projects

Chrislyn Gayhead, CMS
MyPHRSC (Medicare's South Carolina PHR pilot)

Patrick Conway, M.D., ASPE -or-
Elizabeth Holland, CMS
Medicare PHR Choice (PHR pilot in Utah and Arizona)
10:45 - 11:00 a.m. Break  
11:00 - 12:30 p.m. Panel VII: Consumer Advocates and Attitudes

Dave deBronkart, (Blogger, "e-patient Dave"), Co-Chair
Society for Participatory Medicine

Deven McGraw, J.D.
Center for Democracy and Technology

Robert Gellman, J.D.
Independent Privacy Consultant

Susannah Fox, Associate Director, Digital Strategy
Pew Research Center (invited)
12:30 - 1:30 p.m. Lunch  
1:30 - 3:00 p.m. Discussion  
3:00 - 3:15 p.m. Break  
3:15 - 3:45 p.m. Statements from members of the public  
3:45 - 4:45 p.m. Discussion  
4:45 - 5:00 p.m. Plan next steps  
5:00 p.m. Adjournment  

Should you require reasonable accommodation, please contact the CDC Office of Equal Employment Opportunity on (301) 458-4EEO (4336) as soon as possible.

Times, topics, and speakers are subject to change.  For final agenda, please call 301-458-4200 at NCHS or visit the NCVHS Home Page at http://www.ncvhs.hhs.gov

May 11, 2009