2008 Annual Conference Photos
More 2008 Annual
Conference Photos
October 4-5, Salt Lake City, Utah
PXE Awareness newsletter
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About NAPE |
Welcome to the NAPxE
website.
NAPE is an organization committed to the support for people
who have Pseudoxanthoma Elasticum (PXE). Pseudoxanthoma Elasticum is
an inherited disorder that affects the skin, the retina of
the eyes and the cardiovascular system. NAPE is headquartered in
St. Louis, Missouri. Everyone with PXE and those with an
interest in PXE are encouraged to join this organization.
Click here for more information.
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Basic PXE
Information |
PXE was first described about 100 years ago. Initially
it was believed to involve only the skin. The skin
changes were thought to be cholesterol deposits called xanthomas that can occur in the skin of individuals with
high blood cholesterol levels...
Click here for more information.
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Questions & Answers |
Click here for Questions from PXE patients and Answers by medical doctors and others
qualified to respond.
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Current Newsletter |
Click Here for the most current issue of PXE Awareness. |
Membership Information |
Membership fees were dropped in
order to make the newsletter available to more individuals with PXE. Your
contributions to the continuing publication of the
newsletter are always more than welcome, as are any
contributions to NAPE research and service projects. We need
your help to continue our PXE work.
Click here for the membership form.
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President's Page |
Click here to read the President's Page.
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