The PSF is a non-profit organization that raises money to find a cure for proteus syndrome.
In Loving Memory of Alexander Hoag
7/5/90 - 9/20/99
"He did a lot in 9 short years."
My name is Kim Hoag and I am the Founder of the Proteus Syndrome Foundation. I hope you all find our new website easy to navigate and informative. Please be patient while we get it completely up to date with all the information inputted. We will be featuring family stories, medical articles, and all up to date information concerning Proteus syndrome and the families it affects.
In October 2004 the PSF hosted its Biannual Family Conference. We welcomed many new families and many of our returning families were so happy to be able to spend time with each other. There will be much more follow up writing on the conference and many of the presenters have donated their presentations for publication on this website which will be posted soon.
The Proteus Syndrome Foundation has been founded to support and educate familes and professionals, and to raise money for research to find a cure for individuals living with Proteus Syndrome.
navigate and informative. Please be patient while we get it completely up to date with all the information inputted. We will be featuring family stories, medical articles, and all up to date information concerning Proteus syndrome and the families it affects.