ORDR collaborates with Institutes, Centers, and Offices at NIH to stimulate rare diseases research by cosponsoring scientific conferences where research is lagging or to take advantage of scientific opportunities.
Upcoming Conferences
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Weinstein Cardiovascular Development Conference, May 7, 2009 - May 9, 2009
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Flavivirus Immune Epitope Analysis, May 12, 2009 - May 13, 2009
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Workshop on Clinical Trial Endpoints for Acute Graft-versus-Host Disease (Acute GVHD) after Allogeneic Hematopoietic Stem Cell Transplantation (HCT), and the Identification of Future Scientific Directions Needed to the Prevention of Acute GVHD, May 19, 2009 - May 20, 2009
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Clinical Research Priorities for Thalassemia, May 20, 2009 - May 21, 2009
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Improving Cellular Therapy for Primary Immune Deficiency Diseases: Recognition, Diagnosis and Management, May 21, 2009 - May 22, 2009
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Fifth International Conference on Pediatric Mechanical Circulatory Support Systems and Pediatric Cardiopulmonary Perfusion, May 28, 2009 - May 30, 2009
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The First Workshop on Epigenetic Basis of Intellectual and Developmental Disabilities (IDD), May 28, 2009 - May 29, 2009
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American Society for Microbiology (ASM) Conference on DNA Repair and Mutagenesis, May 30, 2009 - June 5, 2009
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2009 Triplet Repeat Disorders Gordon Conference, May 31, 2009 - June 5, 2009
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Workshop to Plan Consortial Activities for Clarifying the Etiology of Male Breast Cancers, May 2009
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Clinical and Translational Workshop on Niemann-Pick Disease, Type C, May 2009
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12th International NCL (Batten) Congress, June 3, 2009 - June 6, 2009
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The Fourth International Workshop on Seizure Prediction (ISPW4), June 4, 2009 - June 7, 2009
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Ion Channel Regulation, June 7, 2009 - June 12, 2009
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International Workshop on Phosphodiesterases: Their Genetics Function and Human Diseases (PDE2009), June 8, 2009 - June 9, 2009
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5th International Scientific Symposium on Tourette Syndrome, June 11, 2009 - June 13, 2009
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2009 NF (Neurofibromatosis) Conference, June 13, 2009 - June 16, 2009
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3rd and 4th Pediatric and Wildtype GIST Clinical Conference, June 17, 2009 - June 19, 2009
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13th Annual International Spinal Muscular Atrophy Research Group Meeting, June 18, 2009 - June 20, 2009
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Formation of a Consortium to Develop Common Protocols and Procedure for the Study of Neurocysticercosis in North America, Summer 2009
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Testicular Cancer and Testicular Dysgenesis Syndrome: Current Perspectives and Future Directions, Summer 2009
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Leishmania: Collaborative Research Opportunities in North Africa and the Middle East, June 22, 2009 - June 26, 2009
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United Mitochondrial Disease Foundation Annual Symposium, June 24, 2009 - June 27, 2009
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Therapeutic Targets for the Congenital Muscular Dystrophies, June 25, 2009 - June 27, 2009
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Workshop on the Biology, Prevention, and Treatment of Relapse after Allogeneic Hematopoietic Stem Cell Transplantation, June 2009
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Pediatric and Adult Gastrointestinal Stromal Tumor (GIST) with IGF-1R Amplification, June 2009
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2009 International Peripheral Nerve Society Meeting, July 5, 2009 - July 8, 2009
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2009 FASEB Summer Research Conference: Mitochondrial Assembly and Dynamics in Health and Disease, July 5, 2009 - July 10, 2009
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Outcome Measures for Clinical Trials in Children with Fragile X Syndrome – Part II, July 8, 2009 - July 9, 2009
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Targeted Therapy for Hypereosinophilic Syndromes, July 12, 2009
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Uncovering Gene-Environment Interactions in non-Hodgkin Lymphoma (NHL) and Its Subtypes: An Interlymph Workshop, July 20, 2009 - July 21, 2009
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The Potential of iPS Cell Therapy for Sickle Cell Anemia, July 2009
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Workshop on RUNX Transcription Factors in Development and Disease, August 16, 2009 - August 19, 2009
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First International Conference on Thymic Malignancies, August 20, 2009 - August 21, 2009
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The Urea Cycle Disorders Satellite Symposium to the 11th International Congress on Inborn Errors of Metabolism (ICIEM) – Overcoming Barriers – New Developments and Future Directions for Urea Cycle Disorders, August 27, 2009 - August 29, 2009
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Society for Inherited Metabolic Disorders Annual Meeting, August 29, 2009 - September 2, 2009
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Cystic Fibrosis and the Liver, August 31, 2009
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Advances and Opportunities in Scrub Typhus Research, August 2009
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7th International Myotonic Dystrophy Consortium Meeting, September 9, 2009 - September 12, 2009
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Cockayne Syndrome: Molecular Mechanisms and Translational Implications, September 12, 2009 - September 16, 2009
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World Congress on Huntington’s Disease 2009, September 13, 2009 - September 15, 2009
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Nutritional Challenges in the High-Risk Infant, September 14, 2009 - September 15, 2009
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Workshop on Autoimmune Lymphoproliferative Syndrome (ALPS) and Related Disorders of Lymphocyte Homeostasis and Apoptosis, September 15, 2009 - September 17, 2009
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SMS Research Roundtable Symposia, held in conjunction with the 6thInternational Family Conference on Smith-Magenis Syndrome, “Building Bridges of Hope,” Sept 17-20, 2009, September 17, 2009 - September 20, 2009
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International Symposium on the Syndrome of Periodic Fevers with Aphthous Stomatitis, Pharyngitis and Cervical Adenopathy (PFAPA), September 21, 2009 - September 22, 2009
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Aortic Disease Summit, September 22, 2009 - September 23, 2009
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TSC (Tuberous Sclerosis Complex) Conference: From DNA to Human Therapies, September 23, 2009 - September 26, 2009
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Osteonecrosis in Pediatric and Adolescent ALL: Insights into the Etiology of this Emerging Toxicity, Fall 2009
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The Sixth Annual North American Genetic Analysis of ABC Transporters Workshop, September 24, 2009 - September 25, 2009
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Developing Novel Therapies for c-Met Addicted Tumors, September 2009
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International Workshop on Cholangiocarcinoma and Hepatocellular Carcinoma, October 6, 2009
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Cellular and Cytokine Interactions in Health and Disease, October 17, 2009 - October 21, 2009
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AA&MDSIF (Aplastic Anemia & Myelodysplastic Syndromes International Foundation) Second Bone Marrow Failure Disease Scientific Symposium, October 21, 2009 - October 23, 2009
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Symposia on Research in Mammalian Germ Cell Mutagenesis, et. al. at the 40th Annual Environmental Mutagen Society (EMS) Meeting on Genomics in the Environmental Century, October 24, 2009 - October 28, 2009
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The Third Multiple Hereditary Exostoses (MHE) Research Conference, October 29, 2009 - November 1, 2009
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Translational Genomics of Neuroblastoma (TGiN) Year 3, October 2009
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Scientific Advances in Adaptive Clinical Trial Design, October 2009
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First International Conference on Sarcoma Biology, November 2, 2009 - November 3, 2009
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Treatment of Hairy Cell Leukemia in its 2nd Half-Century, November 4, 2009 - November 5, 2009
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TREAT-NMD/NIH International Workshop: Bringing Down the Barriers to Translational Research in Neuromuscular Disease, November 17, 2009 - November 19, 2009
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Considerations in Hematopoietic Cell Transplantation (HCT) for Severe Autoimmune Diseases; Co-sponsored by the European Group for Blood and Marrow Transplantation (EBMT), the Center for International Blood and Marrow Transplant Research (CIBMTR), and NIAID, November 19, 2009 - November 20, 2009
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Development of a Multicenter International Collaborative Network for the Study of Human Helminth Co-infections, November 2009
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Implications of the Discovery of MCV on the Etiology, Pathogenesis, and Clinical Management of Merkel Cell Carcinoma, November 2009
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Prader-Willi Syndrome Research Strategy Workshop, November 2009
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Contributions of Inflammatory and Hemostatic Mediators, Genetic Modifiers, and Hemolysis to Pathogenesis of Disease in Hemoglobinopathies, December 2009
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Adaptive and Innate Immune Responses to Neglected Tropical Diseases, January 28, 2010 - January 30, 2010
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International Conference on Mobile DNA, April 2010
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