Family Matters
Changes to Your Roles in the Family Spouses and Partners Children Adult Children Parents Close Friends Summing Up: Cancer and Your Family
Cancer will change your life and the lives of people around you.
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Your routines may be messed up.
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Roles and duties may change.
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Relationships can be strained or strengthened.
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Dealing with money and insurance can cause problems.
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You may need to live with someone else for a while.
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You may need help with chores and errands.
Most people find that if they, their friends, and family talk about the cancer
and how it makes them feel, they feel closer to each other.
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Families are not all alike. Your family may include a spouse (husband or wife),
children, and parents. Or maybe you think of your partner or close friends as
your family. In this book, "family" refers to you and those who love and
support you.
Cancer affects the whole family, not just the person with the disease. How are
the people in your family dealing with your cancer? Maybe they are afraid or
angry, just like you.
When you first find out you have cancer and are going through treatments,
day-to-day routines may change for everyone. For example, someone in your
family may need to take time off work to drive you to treatments. You may need
help with chores and errands.
How your family reacts to your cancer may depend a lot on how you've faced hard
times in the past.
Some families find it easy to talk about cancer. They may easily share their
feelings about the changes that cancer brings to their lives. Other families
find it harder to talk about cancer. The people in these families may be used
to solving problems alone and not want to talk about their feelings.
Families that have gone through divorce or had other losses may have even more
trouble talking about cancer. As one woman with lung cancer said,
"Talking about my cancer was rough at first. My husband and I divorced five
years ago, so my mom had to move in and help me with the boys. Eventually, I
was able to tell my ex-husband about my cancer, and he helped the boys
understand. Our family has been through a lot, and we'll get through this, too.
To me, the only constant in life is change."
If your family is having trouble talking about feelings, think about getting
some help. Your doctor or nurse can refer you to a counselor who can help
people in your family talk about what cancer means to them. Many families find
that, even though it can be hard to do, they feel close to each other when they
deal with cancer together.
When someone in a family has cancer, everyone takes on new roles and
responsibilities. For example, a child may be asked to do more chores or a
spouse or partner may need to help pay bills, shop, or do yard work. Family
members sometimes have trouble adjusting to these new roles.
Adjusting to Your New Situation
Many families have trouble getting used to the role changes that may be
required when a loved one has cancer.
Money. Cancer can reduce the amount of money your family has to spend or
save. If you are not able to work, someone else in your family may need to get
a job. You and your family will need to learn more about health insurance and
find out what your insurance will pay for and what you need to pay for. Most
people find it stressful to keep up with money matters. (For more information
about cancer and your work, see
"Living Each Day".)
Living arrangements. People with cancer sometimes need to change where
they live or whom they live with. Now that you have cancer, you may need to
move in with someone else to get the care you need. This can be hard because
you may feel that you are losing your independence, at least for a little
while. Or, you may need to travel far from home for treatment. If you have to
be away from home for treatments take a few little things from home with you.
This way, there will be something familiar even in a strange place.
Daily activities. You may need help with duties such as paying bills,
cooking meals, or coaching your children's teams. Asking others to do these
things for you can be hard. A young father in treatment for colon cancer said,
"When I came home from the hospital, I wanted to be in charge again but simply
didn't have the energy. It was so hard to ask for help! It was easier to accept
help when I realized that my kids felt that they were contributing to my
recovery."
Developing a Plan
Even when others offer to help, it is important to let people know that you can
still do some things for yourself. As much as you are able, keep up with your
normal routine by making decisions, doing household chores, and working on
hobbies that you enjoy.
Asking for help is not a sign of weakness. Think about hiring someone or asking
for a volunteer. Health insurance sometimes pays for people to help with
household chores. You might be able to find a volunteer through groups in your
community.
Paid help or volunteers may be able to help with:
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physical care, such as bathing or dressing
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household chores, such as cleaning or food shopping
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skilled care, such as giving you special feedings or medications
Just as you need time for yourself, your family members also need time to rest,
have fun, and take care of their other duties. Respite care is a way people can
get the time they need. In respite care, someone comes to your home and takes
care of you while your family member goes out for a while. Let your doctor or
social worker know if you want to learn more about respite care. (See
"People Helping People.")
"I was scared by my husband's cancer. He had always taken care of me and we did
everything together. I was afraid I would not be strong enough to help him
through his recovery. I was afraid that he might not recover. I was afraid to
talk about my fears with him because I did not want to upset him."
Your husband, wife, or partner may feel just as scared by cancer as you do. You
both may feel anxious, helpless, or afraid. You may find it hard to be taken
care of by someone you love.
People react to cancer in different ways. Some cannot accept that cancer is a
serious illness. Others try too hard to be "perfect" caregivers. And some
people refuse to talk about cancer. For most people, thinking about the future
is scary.
It helps if you and the people close to you can talk about your fears and
concerns. You may want to meet with a counselor who can help both of you talk
about these feelings.
Sharing Information
Including your spouse or partner in treatment decisions is important. You can
meet with your doctor together and learn about your type of cancer. You might
want to find out about common symptoms, treatment choices, and their side
effects. This information will help both of you plan for the future.
Your spouse or partner will also need to know how to help take care of your body
and your feelings. And, even though it is not easy, both of you should think
about the future and make plans in case you die from your cancer. You may find
it helpful to meet with a financial planner or a lawyer.
Staying Close
Everyone needs to feel needed and loved. You may have always been the "strong
one" in your family, but now is the time to let your spouse or partner help
you. This can be as simple as letting the other person fluff your pillow, bring
you a cool drink, or read to you.
Feeling sexually close to your partner is also important. You may not be
interested in sex when you are in treatment because you feel tired, sick to
your stomach, or in pain. But when your treatment is over, you may want to have
sex again. Until then, you and your spouse or partner may need to find new ways
to show that you care about each other. This can include touching, holding,
hugging, and cuddling. (See also
"Dealing with a New Self-Image.")
Time Away
Your spouse or partner needs to keep a sense of balance in his or her life. He
or she needs time to take care of personal chores and errands. Your partner
will also need time to sort through his or her own feelings about cancer. And
most importantly, everyone needs time to rest. If you do not want to be alone
when your loved one is away, think about getting respite care or asking a
friend to stay with you. (See
"Caregivers".)
Even though your children will be sad and upset when they learn about your
cancer, do not pretend that everything is okay. Even very young children can
sense when something is wrong. They will see that you do not feel well or are
not spending as much time with them as you used to. They may notice that you
have a lot of visitors and phone calls or that you need to be away from home
for treatment and doctor's visits.
What the family talks about in the evening, the child will talk about in the
morning.
--Kenyan Proverb
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Telling Children About Cancer
Children as young as 18 months old begin to think about and understand what is
going on around them. It is important to be honest and tell your children that
you are sick and the doctors are working to make you better. Telling them the
truth is better than letting them imagine the worst. Give your children time to
ask questions and express their feelings. And if they ask questions that you
can't answer, let them know that you will find out the answers for them.
When you talk with your children, use words and terms they can understand. For
example, say "doctor" instead of "oncologist" or "medicine" instead of
"chemotherapy." Tell your children how much you love them and suggest ways they
can help with your care. Share books about cancer that are written for
children. Your doctor, nurse, or social worker can suggest good ones for your
child.
Let other adults in your children's lives know about your cancer. This includes
teachers, neighbors, coaches, or other relatives who can spend extra time with
them. These other adults may be able to take your children to their activities,
as well as listen to their feelings and concerns. Your doctor or nurse can also
help by talking with your children and answering their questions.
How Children May React
Children can react to cancer in many different ways. For example, they may:
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be confused, scared, or lonely
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feel guilty and think that something they did or said caused your cancer
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feel angry when they are asked to be quiet or do more chores around the house
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miss the amount of attention they are used to getting
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regress and behave as they did when they were much younger
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get into trouble at school or at home
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be clingy and afraid to leave the house
"Now that my Mom has cancer, everything is changed. I want to be with her, but
I want to hang out with my friends, too. She needs me to help with my little
brother, but what I really want to do is play football like I used to."
Teenagers and a Parent's Cancer
Teens are at a time in their lives when they are trying to break away and be
independent from their parents. When a parent has cancer, breaking away can be
hard for them to do. They may become angry, act out, or get into trouble.
Try to get your teens to talk about their feelings. Tell them as much as they
want to know about your cancer. Ask them for their opinions and, if possible,
let them help you make decisions.
Teens may want to talk with other people in their lives. Friends can be a great
source of support, especially those who also have serious illness in their
family. Other family members, teachers, coaches, and spiritual leaders can also
help. Encourage your teenage children to talk about their fears and feelings
with people they trust and feel close to. Some towns even have support groups
for teens whose parents have cancer.
What children of all ages need to know:
About cancer
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Nothing your child did, thought, or said caused you to get cancer.
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You can't catch cancer from another person. Just because you have cancer does
not mean that others in your family will get it, too.
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Just because you have cancer does not mean you will die from it. In fact, many
people live with cancer for a long time.
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Scientists are finding many new ways to treat cancer.
About living with cancer in the family
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Your child is not alone. Other children have parents who have cancer.
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It is okay to be upset, angry, or scared about your illness.
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Your child can't do anything to change the fact that you have cancer.
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Family members may act differently because they are worried about you.
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You will make sure that your children are taken care of, no matter what happens
to you.
About what they can do
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They can help you by doing nice things like washing dishes or drawing you a
picture.
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They should still go to school and take part in sports and other fun
activities.
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They can talk to other adults such as teachers, family members, and religious
leaders.
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Your relationship with your adult children may change now that you have cancer.
You may:
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Ask your adult children to take on new duties, such as making health care
decisions, paying bills, or taking care of the house.
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Ask your children to explain some of the information you've received from your
doctor or to go with you to doctor's visits so they can also hear what the
doctors are telling you.
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Rely on your adult children for emotional support. For instance, you may ask
them to act as "go-betweens" with friends or other family members.
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Want your adult children to spend a lot of time with you. This can be hard,
especially if they have jobs or young families of their own.
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Find it hard to receive--rather than give--comfort and support from your
children.
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Feel awkward when your children help with your physical care, such as feeding
or bathing.
As the adult daughter of a woman with ovarian cancer said,
"Mom was always the rock in the family. Whenever any of us had a problem, we
could go to her for help. Now we had to help her. It was almost as though we
were the parents and she was the child. To make it even harder, we had our own
children to take care of and jobs to go to."
Talking With Your Adult Children
It is important to talk about cancer with your adult children, even if they get
upset or worry about you. Include them when talking about your treatment. Let
them know your thoughts and wishes, in case you do not recover from your
cancer.
Even adult children worry that their parents will die. When they learn that you
have cancer, adult children may realize how important you are to them. They may
feel guilty if they haven't been close with you. They may feel bad if they
cannot spend a lot of time with you because they live far away or have other
duties. Some of these feelings may make it harder to talk to your adult
children. If you have trouble talking with your adult children, ask your doctor
or nurse to suggest a counselor you can all talk with.
Make the most of the time you have with your adult children. Talk about how
much you mean to each other. Express all your feelings--not just love but also
anxiety, sadness, and anger. Don't worry about saying the wrong thing. It's
better to share your feelings rather than hide them.
One who conceals grief finds no remedy for it.
--Turkish Proverb
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Cancer Risk for the Children of People Who Have Cancer
Now that you have cancer, your children may wonder about their chance of getting
it as well. Suggest they talk with a doctor about their risk of getting cancer.
Gene tests can be a way to find out if a person
is at higher risk of getting cancer.
A higher risk for some types of cancer are passed from parent to child. For
instance, the daughter of a woman with breast cancer may be at risk for getting
the same disease. But chances are that her risk is no different than other
women her age. If concerned, however, children should talk with a doctor about
their risk of getting cancer.
Although some gene tests can be helpful, they do not always give people the
kinds of answers they are seeking. Talk to your doctor if you or someone in
your family wants to learn more about gene testing for cancer. He or she can
refer you to a person who is specially trained in this area. These experts can
help you think through your choices and answer your questions.
Since people are living much longer these days, many people with cancer may also
be caring for their aging parents. For example, you may help your parents with
their shopping or take them to doctor. Your aging parents may even live with
you.
You have to decide how much to tell your parents about your cancer. Your
decision may depend on how well your parents can understand and cope with the
news. If your parents are in good health, think about talking with them about
your cancer.
Now that you have cancer, you may need extra help caring for your parents. You
may need help only while you are in treatment. Or you may need to make
long-term changes in your parents' care. Talk with your family members,
friends, health professionals, and community agencies to see how they can help.
(See
"People Helping People")
Do not protect yourself by a fence, but rather by your friends.
--Czech Proverb
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Once friends learn of your cancer, they may begin to worry. Some will ask you to
tell them ways to help. Others will wonder how they can help but may not know
how to ask. You can help your friends cope with the news by letting them help
you in some way. Think about the things your friends do well and don't mind
doing. Make a list of things you think you might need. This way, when they ask
you how they can be of help, you'll be able to share your list of needs and
allow them to pick something they're willing to do.
Sample list of need:
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Baby-sit on days that I go to treatment.
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Prepare frozen meals for my "down days."
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Put my name on the prayer list at my place of worship.
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Bring me a few books from the library when you go.
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Visit for tea or coffee when you can.
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Let others know that it is alright to call or visit me (or let others know that
I'm not ready for visitors just yet).
Families come in many forms. Some are husband, wife, and children. Others are
life partners. Still others are groups of people who love and support each
other.
No matter what form your family takes, your cancer will not only change your
life, but also the lives of those around you.
Cancer impacts families in different ways.
-
Talking about cancer can be hard for some families.
-
Routines of family life may be messed up.
-
Roles and duties within the family will change.
-
Relationships can be both strained and strengthened.
-
Dealing with money and insurance often become hard.
-
You may need to change where you live and with whom, at least for a while.
As you think about how cancer has changed your life and your family's life,
think about reaching outside your family to get help.
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You may need help with household chores and errands.
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Respite care can give your regular caregivers a much-needed break.
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Counseling and support groups can help your family deal with the issues that
cancer raises.
Most families find that being honest and open about the cancer, about the
problems that arise, and about their feelings, helps them handle the changes
that cancer causes.
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