Learning About Your Cancer and Feeling More in Control
Learning From Your Health Care Providers Learning About Your Treatment Choices Learning More About Your Cancer Summing Up: Learning About Your Cancer and Regaining Control
When you first learn you have cancer, daily life can feel like it is turned
upside down. Learning more about your type of cancer and its treatment can help
you feel more in control.
Learn about your type of cancer and its treatment by:
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asking your doctor or nurse questions
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taking notes during your doctor visits
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getting a second opinion
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calling the Cancer Information Service at 1-800-422-6237
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looking up your type of cancer on the Internet at http://www.cancer.gov
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visiting a public library or a hospital library for patients and families
Learning about your cancer can help you talk to your doctor about which
treatment is right for you.
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"At first, I felt overwhelmed. But once I gathered information, I felt
comfortable talking with my doctor about my cancer and ready to make decisions
about my treatment."
Cancer can rob people of a sense of control over their lives. You may feel that
your future is uncertain and you do not know if you will live or die. Or you
may rely on doctors you hardly know to help you make health decisions.
People often feel more in control when they learn as much as they can about
cancer and its treatment. They say that it is easier to make decisions when
they know what to expect. How much do you know about your cancer and its
treatment?
When you see clouds gathering, prepare to catch rainwater.
--Gola (African) Proverb
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Doctors, nurses, and other health care providers can teach you a lot about
cancer and its treatment. But sometimes people have trouble learning because
they are scared or confused. These feelings can make it hard to learn new
information. But, there are things you can do to make it easier to learn.
Ask your doctor or nurse to write down the name and stage of your cancer.
There are many different types of cancer and each type has its own name. "Stage"
refers to the size of the cancer tumor and how far it has spread in your body.
Knowing the name and stage of your cancer will help:
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you find out more about your cancer
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your doctor and you decide what treatment choices you have
Ask as many questions as you need to.
Your doctor needs to know your questions and concerns. Write down your
questions and bring them with you to the doctor's visit. Sometimes you can even
send your questions ahead of time. Your doctor can get information ready for
you if he or she knows your questions in advance. If you have a lot of
questions, you and your doctor may want to plan extra time to talk about them.
Don't worry if your questions seem silly or don't make sense.
All your questions are important and deserve an answer. It's okay to ask the
same question more than once. It's also okay to ask your doctor to use simpler
words and explain terms that are new to you. To make sure you understand, use
your own words to repeat back what you heard the doctor say.
One who asks is a fool for five minutes, but one who does not ask remains a
fool forever.
--Chinese Proverb
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Take someone along when you see the doctor.
Ask a family member or friend to go with you when you see your doctor. This
person can help by listening, taking notes, and asking questions. Later, you
can both talk about what the doctor had to say. If you can't find someone to go
with you when you see the doctor, ask your doctor if he or she will talk with a
friend or family member over the phone.
Take notes or tape record your conversation with your doctor.
Many patients have trouble remembering what they talk about with their doctor.
Ask if you can take notes or make a tape recording. Review these notes or
listen to the tape later. This can help you remember what you talked about. You
might also want to let your family and friends see these notes so that they,
too, can learn what the doctor had to say.
You can learn about your treatment choices by:
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asking your doctor
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getting a second opinion
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calling the Cancer Information Service at 1-800-4-CANCER (1-800-422-6237) or
TTY (for deaf and hard of hearing callers) at 1-800-332-8615
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reading about your type of cancer on the Internet
Every road has two directions.
--Russian Proverb
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Ask Your Doctor to tell you about your treatment choices. Sometimes
there is more than one treatment that can help. Ask how each treatment can help
and what side effects (reactions to the treatment) you might have. If your
doctor asks you to choose which treatment you want, try to learn all you can
about each choice. Let your doctor know if you need more time to think about
these issues before your treatment begins.
Get a Second Opinion from a doctor who takes care of cancer patients (an
oncologist). The oncologist may agree with your first doctor's treatment plan.
Or he or she may suggest something else. Many health insurance plans pay for a
second opinion. Read your policy, call your insurance company, or speak with a
social worker to learn if your insurance plan will pay for a second opinion.
Call the Cancer Information Service at 1-800-4-CANCER (1-800-422-6237)
or TTY (for deaf and hard of hearing callers) at 1-800-332-8615. They can
answer questions and send you information about treatment choices for different
kinds of cancer.
Read About Your Type of Cancer on the National Cancer Institute Web site
at http://www.cancer.gov
There are many other ways to learn about your cancer. You can read books or
journal articles or search for information on the Internet. Make sure, however,
to talk with your doctor about what you learn. He or she can explain what you
don't understand and let you know if anything is untrue or not useful for you.
Here are some ways to get more information about cancer:
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Ask your doctor for printed materials (such as booklets or fact sheets) about
your type of cancer or about cancer in general.
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Look for cancer information at your public library or visit a library for
patients and family members at your local hospital or medical school.
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Call your hospital and ask if they have cancer programs for patients and family
members. Many hospitals offer classes and support groups.
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Search the Internet. The National Cancer Institute Web site at http://www.cancer.gov
is a good place to start. If you do not have a computer at home, most public
libraries have computers you can use.
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Contact the Cancer Information Service at 1-800-4-CANCER (1-800-422-6237) or
TTY (for deaf and hard of hearing callers) at 1-800-332-8615.
When you find out you have cancer, you may feel that your life is no longer
within your control. As if daily life is turned upside down.
For many people, regaining a sense of control begins by learning as much as they
can about their cancer. Talk to your doctor and nurses. Seek information from
the library, the Internet, and the Cancer Information Service to help you learn
about your type of cancer and its treatment.
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