Klippel Feil syndrome dominant type
Please note that the links contained on this search results page may take you
to sites outside of the NIH. (See Disclaimer under Site Policies for details.)
These Web pages are updated as the Genetic and Rare Diseases Information Center receives questions and as new information becomes available. If you don’t see many information resources on this page, it may be because the Information Center hasn’t yet received a question about this condition.
If you have a question, please contact us — we will answer your question and update this page with new resources and information.
For more information about Klippel Feil syndrome dominant type click on the boxes below:
Click arrows to expand or collapse a Resource Section.
Show All Resources
Hide All Resources
- More Detailed Information (Found: 4 Resources)
Links where you can find more general information, comprehensive resources, selected full text journal articles, and news updates
- General
-
The National Organization for Rare Disorders (NORD) is a federation of more than 130 nonprofit voluntary health organizations serving people with rare disorders. Click on the link to view information on this topic.
-
The Online Mendelian Inheritance in Man (OMIM) database contains genetics resources that discuss Klippel Feil syndrome dominant type. Click on the link to go to OMIM and review these resources.
-
Orphanet is a database dedicated to information on rare diseases and orphan drugs. Access to this database is free of charge. Click on Orphanet to access the pages on Klippel-Feil syndrome.
-
PubMed is a searchable database of medical literature and lists journal articles that discuss Klippel Feil syndrome dominant type. Click on the link to view a sample search on this topic.
- Support Groups (Found: 4 Resources)
Groups providing a wide range of services, supportive resources, and information
- Umbrella Organizations
- Live Chat
-
The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
-
RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
- Services (Found: 1 Resource)
Links to Web sites that offer services, such as tools to locate specialists, specialty clinics, genetic services, and genetic testing laboratories
- Ask-an-Expert
-
Family Village is a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those who provide services and support. Click on Family Villiage to view the resource page on Klippel-Feil syndrome.
- NLM Gateway
A tool to search across multiple resources offered on the National Library of Medicine's Website
-
The NLM Gateway allows users to search across multiple resources offered on the National Library of Medicine's Web site. Some of these resources may be duplicated in the list of links above. Click on the link to go to the NLM Gateway, and search by condition name.