PWSA (USA) is an organization of families and professionals working together to promote and fund research, provide education, and offer support to enhance the quality of life of those affected by Prader-Willi syndrome.

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In the spotlight

  • In time for PWS Awareness Month of May, read Janalee Heinemann’s article about PWS in Parenting Special Needs Magazine. Click here.
  • On May 6, families in the state of Georgia will meet with their governor who will present them with a signed Proclamation recognizing May as PWS Awareness Month!  The governor will pose with the group for photos, too. Thanks Georgia families for making this great awareness happen!
  • It’s PWS Awareness Month. You can help increase awareness about PWS by doing just one thing. Click here for ideas on what you can do to help.
  • Daphne's Headcovers, the original headcover company, has teamed up with LPGA touring professional Leta Lindley, and Shannon Grissom, the creator of the Monkey Made of Sockies character in support of the Prader-Willi Syndrome Association (USA). Find out more, including how you can obtain this adorable golf club headcover, by clicking here.
  • Help our PWS Researchers Make Progress on the Syndrome. For many of them, they are dependent on your help. Please consider participating in one or more of their research projects.  Click here and join the PWS research team.
  • Hyperphagia, Scientific and Care Providers Conferences are being held in Baltimore, MD on June 4-5, 2009 [Click here] for more details.
  • Regional Focus and Support Groups in your area. [Click here] to learn more.
  • Front Page News Archive  Items formerly on our front page that cannot be found elsewhere on our site may be kept in a news archive.
Updates

If you are in need of help or advice, please call (800) 926-4797 or email national@pwsausa.org.  We are here to help you!

 

 

 

 

 

 

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