National Organization of Vascular Anomalies | ||||||||||||||||||
Hemangioma & Vascular Malformation Advocacy and Support |
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Information and Support in the Management of Hemangioma, Vascular Malformation & Related Syndromes | ||||||||||||||||||
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The National Organization of Vascular Anomalies is a patient education and advocacy agency for those affected by hemangioma, vascular malformation, rare benign tumors and many related syndromes. Traditionally these tumors and malformations have been called birthmarks. Medicine and science today dictate that they are so much more.
Vascular Anomalies: More Than a Birthmark
Vascular Anomalies include Hemangioma and Vascular Malformations. It has been estimated that up to 60% of all vascular anomalies are misdiagnosed, often resulting in inadequate and inappropriate treatment. Hemangioma is the most common benign tumor of infancy and children. Most develop in the first few weeks of life. These are called Infantile Hemangioma. Others are formed at birth and are called congenital hemangioma. Hemangioma occur in 4-10% of all children, and are more common in females then males. Vascular Malformations are abnormally developed vessels that can occur in any of the blood vessels or lymphatic vessels. Vascular Malformations are always present at birth but often do not become evident until later in life. Hemangioma and Vascular Malformations are often confused and misdiagnosed. This leads to frustration for the parents and the families of those affected. The National Organization of Vascular Anomalies was founded to provide assistance to those individuals affected by hemangioma, vascular malformation and all related syndromes. One in ten children are born with a congenital vascular lesion. Approximately 50-60% of these children will require medical intervention Looking for Treatment visit our Physician List NOVA Around the World NOVA Around the World represents the international support groups founded to coordinate with the VA Treatment Centers in many nations. The Organizations representing NOVA Around the World are Independent and operate with their own board of directors and advisors. We collaborate only to provide information and support to families. Through our collaborative support we can better serve international vascular anomaly community. If you are interested in coordinating support through NOVA Around the World Please contact us.
NOVA Brochure- .pdf file * PHACES Brochure-.pdf file * Pillars of Health Care Reform- .pdf file
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Copyright© 2009 www.novanews.org last updated March 9, 2009
NOVA complies with HON-Code Standards
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NOVA is a 501c3a organization all donations are tax deductible. NOVA was originally founded as Hemangioma Newsline Contact Web Master:support@mail.novanews.org 8711 Six Forks road PMB 126 Raleigh, NC 27615
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