Preface & Acknowledgments
Introduction . . . by Jerry Lewis
Chapter 1 - WHAT IS DUCHENNE MUSCULAR DYSTROPHY?
Genes and Proteins
Dystrophin in Voluntary Muscles
Dystrophin in Other Tissues
DMD is Genetic, But . . .
Girls and Muscular Dystrophy
Chapter 2 - GETTING THE DIAGNOSIS
Preface to Chapter 2
What to Expect in DMD
Becker MD -- a Less Severe Disease
Chapter 3 - SORTING OUT THE WHITE COATS
Doctors
Nurses and Other Professionals
Navigating Through the System
MDA HELPS: Clinics
Chapter 4 - YOUR CHILD'S PHYSICAL NEEDS
The Exercise Question
What About Diet?
Are There Medications to Treat DMD?
Staying Flexible, Upright and Mobile, Part 1
Staying Flexible, Upright and Mobile, Part 2
MDA HELPS: Durable Equipment
Preserving Respiratory Function
Cardiac Problems are Common
What About Myoblast Transfer?
"Miracle Cures"
Chapter 5 - THE FUTURE -- RESEARCH POINTS THE WAY
Gene Therapy by Inserting the Dystrophin Gene
Other Kinds of Gene Therapy
MDA HELPS: Research
Research Other Than Gene Therapy
MDA HELPS: Help MDA Help You
Chapter 6 - YOUR CHILD'S EMOTIONAL NEEDS
Talking With Your Child
Your Child's Emotions
Overprotection and Discipline
Enjoyment and Fulfillment
MDA HELPS: MDA Art Collection
Adolescence
Independence
MDA HELPS: Summer Camp
Relationships
  
Chapter 7 - YOUR CHILD'S EDUCATION AND FUTURE
The Individualized Education Plan (IEP)
Adjustment to School
Learning Disabilities
Assistive Technology
College
The Future
MDA HELPS: Telethon
Chapter 8 - THE FAMILY
Preface to Chapter 8
Your Emotions
Your Marriage
Your Other Children
Family Life, Part 1
Family Life, Part 2
Your Extended Family and Community, Part 1
Your Extended Family and Community, Part 2
MDA HELPS: Support Groups
Caring for the Caregiver
Opportunity for Growth
Chapter 9 - WHEN YOU NEED HELP
Note to Readers / Preface to Chapter 9
Help at Home
Health Insurance and Government Programs
Help in the Community
Chapter 10 - SAYING GOOD-BYE
Medical Decisions
Last Wishes
Hospice
Legal and Financial Issues
Saying Good-Bye
The Grief Process
Siblings
Memorials
RESOURCES
General MDA Resources
Resources listed by Chapter


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