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MISSION
PXE INTERNATIONAL INITIATES, FUNDS AND CONDUCTS RESEARCH; PROVIDES SUPPORT FOR INDIVIDUALS AND FAMILIES AFFECTED BY PSEUDOXANTHOMA ELASTICUM; AND PROVIDES RESOURCES FOR HEALTHCARE PROFESSIONALS.

 
What is PXE?

Pseudoxanthoma elasticum (PXE) is an inherited disorder that causes select elastic tissue in the body to become mineralized.  Learn more about PXE signs, effects and medical care in the PXE GENERAL BULLETIN.

 

Toronto Regional PXE Meeting

PXE International and Dr. Scott Walsh, Program Director of Dermatology at University of Toronto, will host a half-day regional support meeting in Toronto, Ontario, CA on June 20, 2009.  MORE INFORMATION.

 

 

May Webinar:  PXE and the Eye

Presenter: Wai Wong, MD, PhD, National Eye Institute, NIH
Monday, May 11, 2009, 7:30 PM, Eastern Standard Time  REGISTER 

Description: Basic information about the eye, problems PXE causes, current treatments.  If you have questions you would like Dr. Wong to address during the webinar, please email them to Terry Mac Dermaid at tmacdermaid@pxe.org.  

If you have a phone or a computer or both, you can participate! 
How does a webinar work?  WEBINAR FAQ 
View upcoming webinars:  WEBINAR SCHEDULE
Missed a webinar?  Listen to it here.  PAST WEBINARS

 
 
New MemberGram - Fall 2008   PXE Vision: By and For PXEers

MemberGram Fall 2008

DOWNLOAD PDF

 

 

Pat Manson

A PXEer's SUCCESS STORY   10-08
TWO PATHS                    12-07
OWN YOUR DISEASE           10-07
by Pat Manson

PAST COLUMNS

 

 
Vision Information  

Go Clinical Trials Comparing Avastin® and Lucentis®

Go Experiencing a Retinal Bleed?

Go Finally! Analysis of the Use of Avastin for Retinal Bleeding of PXE

Go

 Avastin News - Genentech agrees to allow ophthalmologists access to Avastin for intraocular injection in the treatment of potentially blinding diseases [12-20-2007]

Go One Woman's Journey

Go Amsler Grid Vision Check

 

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