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Patient Information |
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Patients
are the most important part of any illness. Their level of understanding, coping with and
treating an illness can be strengthened with credible information provided by a variety of
resources. Among those resources are doctors, medical journals, and quality references on
the Internet.
Although there is currently no known cure for Chronic Fatigue
Syndrome or Fibromyalgia, patients may find relief in treating their individual symptoms.
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- Where can I learn more about my symptoms and
whether they may actually be related to Chronic Fatigue Syndrome or Fibromyalgia?
- try the National Institutes of
Health information on this site
- visit the NIH Web
site and try keyword searches for "pain," "fatigue,"
"headaches," and other symptoms
- "Chronic Pain" publication from the
National Institute of Neurological Disorders and Stroke (NIH)
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- "Chronic Fatigue Syndrome and School
Success" NCFSFA brochure text
- "A Guide for Physicians When Considering a
Diagnosis of Chronic Fatigue Syndrome in Children" NCFSFA brochure
text
- "A School's Guide for Students with CFS"
NCFSFA brochure text
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- How can I find out about the effectiveness and
validity of nutrition- and health-related products?
- Quackwatch,
operated by a retired psychiatrist, is a non-profit organization which combats
health-related frauds, myths and fads. It includes a worldwide network of expert advisors.
- NutriWatch,
operated by a retired psychiatrist and professor of food science, analyzes health claims
made by nutrition-related products.
- MLM Watch, a
project of Quackwatch, analyzes the health claims made by multi-level marketing products.
- Chirobase,
another joint project of Quackwatch, helps people seek appropriate chiropractic care and
identify unscientific practices used by some chiropractors.
- The National
Council Against Health Fraud focuses on health misinformation, fraud and quackery by
promoting adequate labeling and warranties, proof of safety and effectiveness and
accountability for those who violate the law regarding health-related products.
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- What information is available to help me cope with
Chronic Fatigue Syndrome in relation to my career?
- Our "Chronic Fatigue Syndrome In the
Workplace" brochure discusses common employer sick time
policies, the option of disability benefits, and making the decision to terminate the
employee.
- Social Security disability benefits are briefly
discussed in another NCFSFA brochure.
- Learn about the Americans With Disabilities Act
and how it may affect you. (also in brochure format)
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- What advice is available to help me understand the
range of emotions involved with having CFS?
- The brochure
"Understanding the Emotions Surrounding CFS" discusses everything from fear to
anger to hopelessness.
- Reaffirm the importance of your life by reading 25
reasons to avoid suicide, another brochure.
- Learn about coping skills to help maintain your
equilibrium in the CFS balancing act (from a brochure).
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- Where can I turn for answers to my questions about
being diagnosed with CFS?
- Twenty-three common questions about CFS are
discussed in the brochure "Chronic Fatigue Syndrome: The
Thief of Vitality."
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- How do I find reliable health information on the
Web? read this list in PDF format (Adobe Reader is
needed to view this page. If you do not have Adobe Reader, you can download it here.)
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- What information does the Centers for Disease Control have relating to Chronic Fatigue
Syndrome? The National
Center for Infectious Diseases provides a range of information on CFS including
demographics of patients, treatment and support groups.
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- What should I consider when trying to find and choose a support group? visit the
National Center for Infectious Diseases support group Web page
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