Support Groups

Support GroupsThe following Regional Coordinator volunteers have information on support groups happening in their area. Contact the volunteer for details on the next meeting:

June Bodden* HPN                       Gathering Offers Support
3259 Marigold Dr.
Clearwater, FL 33761
(727) 784-9659
holycow4@webtv.net

Lee Ann Bye (parent) HPEN*     Support Group Meeting Schedule
532 Ridgewood Dr.
Northfield, NJ 08225
(609) 641-9087
allenleeannebye@aol.com

Kathleen McInnes * HEN            Next meeting May 16, 2009
7707 W. Berwyn Ave.
Chicago, IL 60656
(773) 763-8791
mckathleen@yahoo.com

Ann Weaver (parent)* HEN
738 S. Sleight
Naperville, IL 60540
(630) 355-2613
amweaver@wowway.com

James Cowan* HPN
1472 S. Taylor Rd.
Cleveland Hgts., OH 44118
(216) 932-3512

Roberta Gelle* HPN
964 Rosewood Dr.
Elyria, OH 44035
(440) 365-0908
bgelle1@aol.com

Disease specific support groups are available through other organizations, such as:

• AGMD -- motility disorders, i.e. pseudo obstruction, gastroparesis, etc.
www.agmd-gimotility.org, digestive.motility@gmail.com, (781) 275-1300

• MitoAction -- mitochondrial disease
www.mitoaction.org, director@mitoaction.org, 1-888-648-6411