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This page contains links to other organizations of interest to Cystinosis patients, families, and friends. The links are organized into categories, including education, support, and medical and health... Details >
This is the place to discuss the various aspects of cystinosis, a rare disease that primarily affects children. Parents, affected teenagers and adults, caregivers, family, and friends discuss how it a... Details >
This document offers information on Cystinosis, a rare and genetic metabolic disease that primarily affects children. Learn about symptoms and how medications such as Cysteamine (Cystagon), new treatm... Details >
These are facts about the causes, symptoms, and treatment of cystinosis.... Details >
This site is designed as a place to share stories about the children and young adults with Cystinosis. ... Details >
This online newsletter is a product of the Cystinosis Research Foundation. Its mission is dedicated to funding bench and clinical research for the development of improved treatments and finding a cure... Details >