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The Study of Disease Severity in Adults with NF1Overview: The Study of Disease Severity in Adults with NF1We invite you to join a research study of neurofibromatosis type 1 (NF1) in adults at the National Institutes of Health (NIH). We are trying to answer a simple question: in a family with NF1, why do some family members have more serious disease than others? By asking this question, we hope to find genes that control the seriousness (or severity) of NF1. Neurofibromatosis type 1 is a genetic disease that causes changes in the growth of nerves, skin and bones. It is found in about 1 in 3500 people. Both males and females can get NF1, it affects people of all races and ethnicities and the disease usually starts in childhood. To find out more about the Neurofibromatosis Type 1 study at the National Human Genome Research Institute (NHGRI), please explore the Neurofibromatosis Type 1 Study Web pages. Brochure for the Study of Disease Severity in Adults with NF1 Douglas R. Stewart, M.D. Contact InformationSarah Coombes, M.S., C.G.C. Top of page Last Updated: April 6, 2009 |
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