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Health Professional Education

Curricula, books and online courses on genomics and genetics for health professionals.

For Nurses

• Genetics/Genomics Nursing: Scope and Standards of Practice
  Broadly describes genetics and genomics nursing practice, then delineates the scope of genetics clinical nursing practice in the United States.
  • International Society for Nurses in Genetics (ISONG). 2007. Genetics/Genomics Nursing: Scope and Standards of Practice. Silver Spring, MD: American Nurses Association and ISONG. 200 pages. December 2004.
    
    
• Genetic Nursing Portfolios: A New Model for Credentialing
  Shows how a genetics nursing portfolio is assembled and which criteria are used in its evaluating to verify competency.
• Rita Black Monsen, ed. 2005. Genetics Nursing Portfolios: A New Model for Credentialing. Silver Spring, MD: American Nurses Association and International Society for Nurses in Genetics. 95 pages. November 2006.
  
  
• Genetic and Genomic Nursing: Competencis, Curricula Guidelines and Outcome Indicators, 2nd Edition
  Establishes the minimum basis with which to prepare the nursing workforce to deliver competent genetic and genomic focused nursing care. First edition — Competencies and Curricula Guidelines established by Consensus Panel, September 21-22, 2005 and published by the American Nurses Association, Silver Spring, Maryland 2006. Second edition — Outcome Indicators established by Consensus, June 2008.
  Watch this site for specific plans to move this project forward.
  
  
• Frequently Asked Questions on the Essential Nursing Competencies and Curricula Guidelines for Genetics and Genomics
  Includes information on endorsing the competencies.
  If your organization wishes to endorse the competencies, contact Jean Jenkins at jean.jenkins@nih.hhs.gov

For Doctors

• Articles on Genetics and Genomics for Clinicians
  Dr. Greg Feero, chief of the Genomics Healthcare Branch at the National Human Genome Research Institute, has authored a set of short, clinically relevant articles on genetics and genomics that are now available here for health care professionals.
  
  
• 2005 Genomics: American Academy of Family Physicians Annual Clinical Focus [aafp.org]
  merican Academy of Family Physicians educational initiative help physians use genomic information to meet the needs of patients.
  
  
• Genetics in Clinical Practice: A Team Approach [iml.dartmouth.edu]
  Offered by Dartmouth University's Interactive Media Laboratory, this downloadable course based on the "Virtual Practicum" model is intended for health care providers where knowledge of clinical genetics can positively affect outcomes. Note: This course is offered free by download with a high-speed internet connection. NHGRI does not endorse, encourage or require purchasing this product.
  
  

Additional Resources

• Population-based Carrier Screening for Single Gene Disorders: Lessons Learned and New Opportunities
  Summary of the February 6-7, 2008 meeting covering topics on experiences of large-scale carrier screening programs for cystic fibrosis (CF), sickle cell disease, and Tay-Sachs disease (TSD), the impact of emerging technologies on the ability to screen for disorders such as spinal muscular atrophy (SMA) and fragile-X syndrome (FXS); the ethical, legal, and social challenges raised by carrier screening, and public health perspectives on screening for genetic disorders in the setting of expanding technical capabilities.

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Last Updated: March 16, 2009