HomeHealthGenetics and Genomics for Patients and the PublicOnline Health and Support Resources IRB Related Resources Online

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IRB Related Resources Online

• My Very Own Medicine: What Must I know? Information Policy for Pharmacogenetics.
  Public Health Genetics Unit, National Health Service, UK - D. Melzer et al. (2003).
  www.phgu.org.uk/epg/Report.pdf
  General information and background, looking ahead to future needs, including guidance for IRBs
  
  
• New York State Task Force on Life and Law:
  Genetic Testing and Screening in the Age of Genomic Medicine (2001).
  www.health.state.ny.us/nysdoh/taskfce/screening.htm
  Includes general and state specific information in a bulleted report that is relatively easy to scan by topic
  
  
• Office for Human Research Protections: Protecting Human Research Subjects
  http://www.hhs.gov/ohrp/
  Discusses many issues that continue to challenge IRBs and investigators (and policy makers) today
  
  
• Pharmacogenetics: Ethical Issues.
  Nuffield Council on Bioethics (2003).
  www.nuffieldbioethics.org/publications/pp_0000000018.asp
  Includes a section discussing the use of pharmacogenetics in clinical trials

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Last Reviewed: January 23, 2009