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Angioma Alliance is a non-profit international patient advocacy organization created by people affected by cavernous angioma (cerebral cavernous malformation). The organization works to inform and sup... Details >
The Association for Neuro-Metabolic Disorders, (ANMD), a non-profit organization, was founded in 1984 at the University of Michigan Medical Center, Ann Arbor. ANMD's primary objective is to serve as ... Details >
The Association for Neuro-Metabolic Disorders, (ANMD), a non-profit organization, was founded in 1984 at the University of Michigan Medical Center, Ann Arbor. ANMD's primary objective is to serve as ... Details >
Beckwith-Wiedemann Syndrome (BWS) is a congenital growth related disorder. There are roughly thirty characteristics which can be associated with BWS. Most often seen are enlarged tongue, umbilical h... Details >
Birth Defect Research for Children provides information and support to families of children with birth defects. BDRC sponsors research on birth defects caused by exposures to environmental agents--dr... Details >
CHERUBS is a volunteer organization that provides support, information and resources related to Congenital Diaphragmatic Hernia (CDH). Membership in the organization is open to adult survivors and par... Details >
Children's PKU Network is a nonprofit agency founded in 1991 by the parents of a child diagnosed with PKU (Phenylketonuria). The agency offers support through various programs to assist families with... Details >
Established in 1977 as a not-for-profit voluntary organization, the International Joseph Diseases Foundation is dedicated to assisting individuals who are affected by or may be at risk for Joseph Dise... Details >
The Klippel-Trenaunay Syndrome Support Group's mission is to provide support for K-T Syndrome patients and their families. Their objectives in accomplishing this mission are: to act as a support grou... Details >
KS&A’s mission is to help individuals with one or more extra X and/or Y chromosomes and their families lead fuller and more productive lives.... Details >