7:30 am
Continental Breakfast
8:00 am
Welcome, Introductions, and Conflict of Interest Statement
Stephen Katz, NIAMS and John Porter, NINDS
MDCC Member Action Plan Activity Reports
8:15 am
NIH Action Plan Report - John Porter, NINDS
8:35 am
NIH RFA: Nuclear Structure-Function Defects in the Pathogenesis of Muscular Dystrophy
John Porter, NINDS, Glen Nuckolls, NIAMS, and Sharon Hesterlee, MDA
8:45 am
Wellstone Muscular Dystrophy Cooperative Research Centers
Activity Report and Plans for New RFA
Glen Nuckolls, NIAMS
9:05 am
CDC Action Plan Report
Pamela Costa, CDC
9:25 am
FSH Society Action Plan Report
Daniel Perez, FSH Society
9:45 am
Break
10:00 am
DoD CDMRP Action Plan Report
Melissa Kaime, CDMRP
10:20 pm
MDA Action Plan Report
Sharon Hesterlee, MDA
10:40 am
NIDRR Action Plan Report
Steven Tingus, NIDRR
11:00 am
PPMD Action Plan Report
Patricia Furlong, PPMD
11:20 am
Action Plan Report
Michele Lloyd-Puryear, HRSA
11:40 am
Lunch
12:10 pm
Discussion: (a) Roles of Other MDCC Agencies/Organizations and (b) Scientific Gaps Within and Beyond the Action Plan for the
Muscular Dystrophies
New Initiatives and Partnerships
12:50 pm
Interface with European Efforts in Muscular Dystrophy (DRCI & TREAT-NMD
Sharon Hesterlee, MDA
1:20 pm
CDC Muscular Dystrophy Registry Initiative
Pamela Costa, CDC
1:50 pm
Common Data Elements for Clinical Studies in Muscular Dystrophy
Giovanna Spinella, ORD and PPMD and Laurie Gutmann, NINDS
2:20 pm
Introduction to the NIH Workshop on Translational Research in Muscular Dystrophy
Kathy Mathews, Univ. of Iowa and John Porter, NINDS
2:40 pm
Open Discussion/Public Comment Period
3:15 pm
Adjourn
Last updated November 02, 2007