Support Groups
International Internet California Colorado Connecticut Florida Georgia Illinois Iowa Maine Maryland Massachusetts Michigan New Jersey New York North & South Carolina Ohio Oregon Pennsylvania Tennessee Texas Virginia
International Parents of Children with Brain and Spinal Cord Tumors
Contact: Adina and Carl Sherer Location: Israel City: Tel Aviv and Jerusalem Phone: 011-972-2-571-2033 E-mail: sherer@actcom.co.il Meetings held: Monthly
InternetDay by Day Private Listserv E-mail: Gigi at gigi@lgcy.com or Liz at stocktrdenbabe@aol.com
Hypothalamic Hamartoma Online Support Group
Contact: Kathleen Davis E-mail: rwdavis@logan.net Website: http://www.hhugs.com Meetings held: online, ongoing
Medulloblastoma Online Support Group E-mail: medulloblastoma-owner@yahoogroups.com
N-blastoma(parents of children with neuroblastoma) Website: http://listserv.acor.org/archives/n-blastoma.html
Optic-Glioma Online Support Group E-mail: optic-glioma-subscribe@yahoogroups.com
The Cancer Center Website: https://www.chop.edu/consumer/jsp/division/generic.jsp?id=80749
PatchWorx Contact: Teresa Middleton Location: 333 Ravenswood Avenue City: Menlo Park, CA
E-mail: patchworx@patchworx.org Website: http://www.patchworx.org
Ped-onc Listserv (parents of children on/off treatment for cancer) Website: http://listserv.acor.org/archives/ped-onc.html
Pediatric Brain Tumor Online Support Group E-mail: pediatricbraintumors-subscribe@yahoogroups.com
Sacramento Area Brain Tumor Support Group Contact: Karen Smith
Location: Lawrence J. Ellison Ambulatory Care Center 4860 Y St., Room 3015 City: Sacramento, CA Phone: 916-734-5613 E-mail: kksmith@ucdavis.edu Meetings held: 1st Thursday of every month, 6:30 to 8:30 PM
Santa Barbara Brain Tumor Support Group Contact: Cathie Nelson Location: Cancer Center of Santa Barbara 300 West Pueblo Street, Front Lobby City: Santa Barbara, CA Phone: 805-682-7300
Meetings held: 2nd Thursday of each month, 5:30-7:00 PM
We Can - Pediatric Brain Tumor Network Contact: Gigi McMillan Location: P.O. Box 614 City: Manhattan Beach, CA Phone: 310-739-3433
E-mail: gigi@wecan.cc Website: www.wecan.cc Meetings held: please contact for dates and times, but services are provided in Sherman Oaks, Manhattan Beach, Los Angeles, Granada Hills, Bakersfield, Orange County, San Bernardino, and the San Francisco Bay Area.
Colorado Patient & Family Brain Tumor Support Group
Contact: Amy Ebert Location: Anschutz Oupatient Pavilion, Room 2005 1635 N. Ursula St. City: Aurora, CO Phone: 303-315-6635 E-mail: amy.ebert@UCHSC.edu
Meetings held: 1st Wednesday of every month, 5:00-7:00 PM *Primarily for adults
Connecticut Children's Medical Center Support Group Contact: Mary Laliberte
Location: Connecticut Children's Medical Center 282 Washington Street, Clinic 2J City: Hartford, Connecticut Phone: 860-545-9620 E-mail: mlalibe@ccmckids.org Meetings held: 2nd Thursday of each month, 6:00-7:30
*Parent group and a patient-sibling group both run at the above time. There are also ongoing teen groups, contact CCMC for more info.
Florida Brain Tumor Association Contact: Sheryl Shetsky Location: Boca Raton Community Hospital
City: Boca Raton, Florida Phone: 954-755-4307 E-mail: Bt1Diva@aol.com Website: http://www.fbta.info/ Meetings held: 2nd and 4th Thursday of each month, 7:30-9:00 PM
Children On Board (Pediatric Hematology/Oncology Support Program) Contact: Cheryl Bansen, MSW, LCSW Location: Florida Hospital Cancer Institute 2401 N. Orange Avenue
City: Orlando, Florida Phone: 407-303-2078 Meetings held: 3rd Wednesday of every month, 12:00-1:30 PM *Must call in advance and make a reservation to attend the group
Brain Tumor Foundation for Children Support Group Contact: Mary Campbell Location: Brain Tumor Foundation for Children 1835 Savoy Drive, Suite 316 City: Atlanta, Georgia Phone: 770-458-5554
E-mail: btfc@bellsouth.net Website: www.braintumorkids.org Meetings held: ongoing, contact the foundation for more info *both parents and children are welcome
Southeastern Brain Tumor Foundation Support Group
Contact: Carla Levingston Location: THE WELLNESS COMMUNITY Peachtree Dunwoody Pavilion 5775 Peachtree Dunwoody Road, Building C, Room 225 City: Atlanta, Georgia Phone: 404-843-3700
Meetings held: 2nd Monday of each month, 7:00-8:30 PM
Brain Tumor Support Group Contact: Judy Selle Location: Decatur Public Library
247 E. North Street City: Decatur, Illinois Phone: 217-876-2780 Meetings held: 3rd Saturday of every other month, 10:00 AM-12:00 PM
Midwest Children's Brain Tumor Center Family Support Program Contact: Denise Fleig
Location: Lutheran General Children's Hospital 1675 Dempster Street City: Park Ridge, IL Phone: 847-723-5105 E-mail: denise.fleig@advocatehealth.com Meetings held: 2nd Wednesday of the month, 7:00 PM
Lighthouse SOS (support for pediatric brain and spinal cord tumors families of the midwest) Contact: Carol Nielson or Mary Wilder Phone: 515-965-1443 or 507-453-5274
E-mail: cnielson@lighthousesos.org or mwilder@lighthousesos.org Website: http://www.lighthousesos.org
Quad Cities Brain Tumor Support Group Contact: Pat Christy
Location: Genesis Medical Center 1401 W. Central Park City: Davenport, Iowa Phone: 563-421-1905 E-mail: christyp@genesishealth.com Meetings held: 4th Monday of the month, 6:30 to 8:00 PM
Maine Brain Tumor Support Group Contact: Nancy Fortier Location: Maine Medical Center Dana Education Center Classroom #1 22 Bramhall Street
City: Portland, Maine Phone: 207-871-4527 Meetings held: 2nd Tuesday of every month, 7:00-9:00 PM
Brain Tumor Networking Group
Contact: Jeff Klug Facilitator: Robin Katz Location: Hopewell Cancer Support 901 Dulaney Valley Rd., suite 710 City: Baltimore, Maryland (this address is valid through November 24, 2003) 10628 Falls Road
City: Lutherville, Maryland (this address is valid after November 24, 2003) Phone: 410-832-2719 Meetings Held: 4th Monday of the month, 7:00 to 8:30 PM
Meningioma Listserve Contact: Tammy Cuda Phone: 410-614-2886
E-mail: cudata@jhmi.edu Website: http://www.hopkinsmedicine.org/...meningioma.cfm
Pituitary Tumor Support Group of New England Contact: Diane Chen
Location: Varies (group via telephone hookup) City: Boston Area, MA Phone: 978-352-9791 E-mail: parishrd@yahoo.com Meetings held: Saturday noon
Brigham & Women's Brain Tumor Support Group
Contact: Nancy Olsen Location: 75 Francis St. City: Boston, MA Phone: 617-732-6826 Meetings held: 1st and 3rd Wednesday of the month, 5:30-7:00 PM
Massachusetts General Hospital Brain Tumor Support Group (1)
Contact: Jean Kracher or Michele Lucas Location: Massachusetts General Hospital Cancer Center conference room on Cox 6 55 Fruit Street City: Boston, MA Phone: 617-726-7851 or 617-726-1061
Meetings held: 2nd and 4th Mondays of each month, 12:00 to 1:30 PM
Massachusetts General Hospital Brain Tumor Support Group (2) Contact: Jean Kracher or Michele Lucas Location: Massachusetts General Hospital West First floor conference room
40 Second Avenue City: Waltham, MA Phone: 617-726-7851 or 617-726-1061 Meetings held: 2nd and 4th Tuesdays of each month, 7:00 to 8:30 PM
Brain Tumor Society Support Group at Lahey Clinic Contact: Michele Lucas
Location: Lahey Clinic Medical Center Room 5-301, central clinic conference room 41 Mall Road City: Burlington, MA Phone: 617-726-1061 Meetings held: 1st and 3rd Mondays of each month, 7:00-9:00 PM
Umass-Worcester Brain Tumor Support Group Contact: Rebecca Dineen Location: Surgery Clinic, first floor of the hospital 55 Lake Avenue North City: Worcester, Massachusetts Phone: 508-856-3611
Meetings held: 2nd Tuesday of the month, 6:00-8:00 PM
Brain Tumor Support Group (Gilda's Club of Greater Detroit) Contact: Michael Mantas Location: 3517 Rochester Road
City: Detroit, Michigan Phone: 248-577-0800 Meetings Held: 4th Tuesday of the month, 6:00-8:00 PM
Central New Jersey Brain Tumor and Resource Center
Mailing Address: P.O Box 221, Martinsville, NJ 08836
Contact: Patty Anthony Phone: 732-321-7000 x66785 Email: panthony@solarishs.org
Contact: Stan or Virginia Shrodo Phone: 908-685-0917 Email: Info@njbt.org
Meeting Location: St. Luke's Church, 300 Clinton Ave. City: North Plainfield, NJ
Meetings held: 1st Thursday of the month 7:00 pm - 8:30 pm
Monmouth and Ocean County Brain Tumor and Resource Center (www.njbt.org)
Mailing Address: P.O. Box 634, Oakhurst, New Jersey 07755
Contact: Nancy Conn-Levin Phone: 732-922-9686 Email: Mngioma634@aol.com
Contact: Bruce Blount Phone: 609-758-0806 Email: brub58@comcast.net
Meeting Location: Monmouth County Library, Wall Township Branch
2700 Allaire Road, Wall, NJ
Meetings held: 1st Saturday of the month 3:00 pm - 4:45 pm
1st Thursday of the month 7:00 pm - 8:30 pm (July and August)
Gathering for People Treated for Primary Brain Tumors (and their families and friends) Contact: Clarissa Potter Location: Rockefeller Research Laboratories 430 East 67th Street City: Manhattan, NY
Phone: 212-639-8189 or 212-717-3527 E-mail: potterc@MSKCC.org Meetings held: 4th Wednesday of every month
Long Island Adult Brain Tumor Support Group of Nassau County Contact: Donna Lankford Location: 999 Old Country Road
City: Plainview, New York Phone: 516-922-4134 E-mail: DPuzzle@aol.com Meetings held: 1st Thursday evening of the month
Support for Parents of Children with Brain Tumors, Siblings, and Young Adults Contact: Dr. Marcia Greenleaf
Location: 19 E. 88 Street, suite 1D City: Manhattan, NY Phone: 212-534-8877 Meetings held: Call for days and times
Voices Against Brain Cancer and the American Cancer Society Support Group for Caregivers and Family Members of Brain Tumor Patients
Contact: David Pulli, LMSW, 212-237-3843 or visit www.voicesagainstbraincancer.org
Location: American Cancer Society
132 W. 32nd St (Between 6th and 7th Ave.), 4th Floor
New York, NY 10001
Meetings held: 4th Wednesday Evening of Every Month, 6:00 – 7:30 PM
The Brain Tumor Support Group of the Carolinas & Virginia Contact: Rayetta Johnson Location: Wake Forest University Baptist Medical Center/Cancer Services 3175 Maplewood Avenue City: Winston-Salem, NC
Phone: 336-716-4137 Meetings held: 2nd Tuesday of each month, 6:30-8:00 PM
Cleveland Clinic Brain Tumor Support Group Contact: Kathy Lupica Location: Taussig Cancer Center
R building, conference room R3-03 9500 Euclid Avenue City: Cleveland, Ohio Phone: 216-445-6910 E-mail: lupicak@cc.ccf.org Meetings held: 4th Wednesday of the month, 5:00 PM
*group for caregivers of adult brain tumor patients; however, caregivers of adolescent patients have participated as well.
Brain Tumor Support Group Contact: Dawn Brucker or Dawn Giza Location: Legacy Good Samaritan Hospital
Comprehensive Cancer Center, 2nd Floor Conference Room 1130 N.W. 22nd Avenue City: Portland, Oregon Phone: 503-413-7921 or 503-413-7842 E-mail: dbrucker@LHS.org Meetings held: 1st and 3rd Wednesday of each month, 4:00-5:30 PM
*Primarily for Adult patients with brain tumors
Brain Tumor Support Group of The Lehigh Valley Contact: Dolores Fioriglio Location: St. Johns' Lutheran Church
City: Emmaus, PA Phone: 610-776-2566 E-mail: dfioriglio@aol.com Meetings held: 2nd Tuesday of each month at 7:30 PM
Pediatric Cancer Foundation of the Lehigh Valley, Inc.
Contact: Nicole Ronco, 610-393-9215
Location: Camelot for Children City: Allentown, PA E-mail: info@cancersupportgroup.org Website: www.cancersupportgroup.org
Meetings are held the 4th Tuesday of every month from 6:30pm-8:30pm Childcare will be provided
Pittsburgh Area Brain Tumor Support Group Contact: Bonnie Shields, MSW Location: Cancer Caring Center City: Pittsburgh, PA Phone: 412-622-1212 E mail: info@cancercaring.org Meetings held: 1st and 3rd Wednesdays of the month, 7:00-8:30 PM
Memphis Regional Brain Tumor Support Group
Contact: Robbie Lowery Location: 44 South Cleveland City: Memphis, TN Phone: 901-726-6868 E-mail: r.lowery@angelfire.com Meetings held: 1st Thursday of each quarter, i.e. April, August, December
Central Texas Brain Tumor Support Group Contact: Thomas & Joan Lewman Telephone: (512) 636-3015 or (512) 636-1578 www.txbraintumor.org
Location: The Brain & Spine Center at Brackenridge Hospital
3rd Floor Boardroom
601 E. 15th St
Austin, Texas 78701
(512) 324-7000
Meeting: 6:30pm–8:00pm every second Thursday of the month. No fee.
Grey Matters North Texas Brain Tumor Support Group Location: HealthSouth Plano Rehabilitation Hospital 2800 West 15th Street
City: Plano, Texas Phone: 972-867-3431 E-mail: greymattersnorthtexas@yahoo.com Website: www.greymatters.us Meetings held: 1st Tuesday of every month, 7:00-9:00 PM
*primarily for caregivers of adults but children and their parents are welcome
Houston Area Brain Tumor Network Contact: Donna Suckow or Susana Lee Location: M.D. Anderson Cancer Center Place of Wellness
1515 Holcombe Blvd. City: Houston, Texas Phone: 713-792-0772 or 713-794-1777 E-mail: dsuckow@mdanderson.org Meetings held: 1st Tuesday of the month, 6:00-8:00 PM
The Brain Tumor Support Group of the Carolinas & Virginia Contact: Rayetta Johnson Location: Wake Forest University Baptist Medical Center/Cancer Services 3175 Maplewood Avenue City: Winston-Salem, NC
Phone: 336-716-4137
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