Support Groups
The following Regional Coordinator volunteers have information on support groups happening in their area. Contact the volunteer for details on the next meeting:
June Bodden* HPN
Gathering Offers Support
3259 Marigold Dr.
Clearwater, FL 33761
(727) 784-9659
holycow4@webtv.net
Lee Ann Bye (parent) HPEN*
Support Group Meeting
Schedule
532 Ridgewood Dr.
Northfield, NJ 08225
(609) 641-9087
allenleeannebye@aol.com
Kathleen McInnes * HEN
Next meeting May 16,
2009
7707 W. Berwyn Ave.
Chicago, IL 60656
(773) 763-8791
mckathleen@yahoo.com
Ann Weaver (parent)* HEN
738 S. Sleight
Naperville, IL 60540
(630) 355-2613
amweaver@wowway.com
James Cowan* HPN
1472 S. Taylor Rd.
Cleveland Hgts., OH 44118
(216) 932-3512
Roberta Gelle* HPN
964 Rosewood Dr.
Elyria, OH 44035
(440) 365-0908
bgelle1@aol.com
Disease specific support groups are available through other
organizations, such as:
• AGMD -- motility disorders, i.e. pseudo obstruction, gastroparesis,
etc.
www.agmd-gimotility.org,
digestive.motility@gmail.com, (781) 275-1300
• MitoAction -- mitochondrial disease
www.mitoaction.org,
director@mitoaction.org,
1-888-648-6411