LifelineLetter
A bi-monthly newsletter that helps consumers live with home parenteral and/or enteral nutrition
The information provided on this site is designed to support, not replace, the relationship between a consumer and his or her physician. All issues, ideas, suggestions etc. should be discussed with your health care provider prior to actual use. Medical information is reviewed by the Foundations Medical & Research Director, but does not imply endorsement by the Oley Foundation. If you have questions please contact Oley's Executive Director, Joan Bishop, at bishopj@mail.amc.edu.
Major articles indexed by issue below or download the entire issue in PDF format. PDF files require adobe acrobat to read them. This FREE software is available at www.adobe.com
Click here for Tube Talk articles
- Parenteral Nutrition, Liver Disease, and N-acetyl Cysteine in Infants and Children
- Wouldn't Miss and Oley Conference
- Tube Talk
January/February, 2009 (download in PDF format)
- Venous Thrombosis Associated with VADs
- Getting Grounded (In a Good Sense)
- 2009 Oley Award Nominations
- Tube Talk
November/December, 2008 (download in PDF format)
- Recognizing Depression: A Step toward Improving Health and Well-Being
- Summer Camp Opportunities (from Camper's and Mom's perspective)
- Tube Talk
September/October, 2008 (downloadable PDF format)
- Dietary Management for Short Bowel Syndrome: What You Eat Does Matter
- My Life Long Journey on PN
- Tube Talk
July/August, 2008 (downloadable PDF format)
May/June, 2008 (downloadable PDF format)
- Writing Winning Insurance Appeal Letters
- Finding My New Normal
- Medicare Update: EN Competitive Bidding
- Tube Talk
March/April, 2008 (downloadable PDF format)
- 23rd Annual Oley Conference Registration Packet
- The Scoop on Heparin
- Meet Tim Weaver: A Teenager on the Go
- My First Conference
- Tube Talk
January/February, 2008 (downloadable PDF format)
November/December, 2007 (downloadable PDF format)
- Trace Element Requirements for Adults on Long-Term Parenteral Nutrition
- A Teenager's Journey
- Tube Talk
September/October, 2007 - (downloadable PDF format)
- Parenteral Nutrition - Associated Liver Disease and the Role of Lipid Emulsions: An Update
- Holiday Hurdles
- Clonideine Reduces Diarrhea, Sodium Loss
- Tube Talk
July/August 2007 - (downloadable PDF format)
May/June 2007 - (downloadable PDF format)
March/April 2007 -
Consumer survey (PDF format)
Consumer survey online
March/April 2007 -
Professional survey (PDF format)
Professional survey online
January/February 2007 - (downloadable PDF format)
- Probiotics: Nature Becomes Therapy
- Positively Purrfect Pets
- Understanding the Grieving Process
- Tube Talk
November/December 2006 - (downloadable PDF format)
- The Cleveland Clinic's Experience with Home Parenteral
Nutrition
Associated Liver Disease - Parenthood and TPN
- Tube Talk
September/October 2006 - (downloadable PDF format)
- HPN-Associated Liver Disease in Infants
- A Tale of Two Sisters
- Tube Hell and Back Again
- A Holiday Tale
- Tube Talk
July/August 2006 - (downloadable pdf format)
May/June 2006 - (downloadable pdf format)
- The Role of Growth Factors and Glutamine in Enhancing Gut Adaptation
- Preparing Your Child for a Medical Procedure
- Tube Talk
January/February 2006 - (downloadable pdf format)
November/December 2005 - (downloadable pdf format)
- A Doctor’s Perspective on Pain Management
- Back-to-Basics Plan Saves Lives in the ICU's
- Tube Talk
- Keep Me Safe - Insert
- Regional Coordinator list - Insert
July/October 2005 Special Double Issue - (downloadable pdf format)
May/June 2005 - (downloadable pdf format)
- Oral Rehydration Solution: A "Low Tech" Oft Neglected Therapy
- Specialized Nutrition: Patient's Perspective (part III)
- HPEN Quality of Life Study
March/April 2005 - (downloadable pdf format)
- Specialized Nutrition: The Patients Perspective (Part II)
- Trends in Ambulatory Infusion Pumps
- Welcome Regional Coordinator Volunteers
January/February 2005 - (downloadable pdf format)
November/December 2004 - (downloadable pdf format)
July/October 2004 - Special Double Issue
Part I - (downloadable pdf format)Part II - (downloadable pdf format)
- Dietary Recommendations for Patients with Intestinal Failure
- A Reader's Response to Dr. Howard's End of Life Article
- 2004 Oley Award Winners
- Tube Talk
May/June 2004 - (downloadable pdf format)
March/April 2004 - (downloadable pdf format)
January/February 2004 - (downloadable pdf format)
November/December 2003 - (downloadable pdf format)
- Home Enteral Nutrition
- On Top of the World
- Tips for Parents: How to make the most of doctor visits
- Tube Talk
September/October 2003 - (downloadable pdf format)
July/August 2003 - (downloadable pdf format)
May/June 2003 - (downloadable pdf format)
March/April 2003 - (downloadable pdf format)
January/February 2003 - (downloadable pdf format)
November/December 2002 - (downloadable pdf format)
September/October 2002 - (downloadable pdf format)
July/August 2002 - (downloadable pdf format)
- Learning Together, Sharing Good Times
17th Annual Conference Was a Huge Success - Try Your Hand at the HPEN Millionaire Quiz
- Study Recommends Chlorhexidine for CVC Site Care
- Oley Celebrates 2002 Award Winners
May/June 2002 - (downloadable pdf format)
- Making Friends with Fear
- Don't Let This Happen to You
- Bright Ideas from Our Readers
- Poem 'My Brother' by sibling of homePEN consumer
March/April 2002 - (downloadable pdf format)
January/February 2002 - (downloadable pdf format)
- FDA Approves New Endoscopic Tool
- What Makes a Research Study Valid?
- Consumer Carries the Olympic Torch
November/December 2001
- FDA Approves Alteplase for Catheter Clearance
- Tips for Flying with Heightened Airport Security..****
- Take Your Turn at the HomePEN Millionaire Quiz
Answers
September/October 2001 - (downloadable pdf format)
July/August 2001 - (downloadable pdf format)
- Oleic Acid: A Novel Nutrient - Based Treatment for Improving Absorption
- Ever Wonder...
- 2001 Oley Award Winners
May/June 2001 - (downloadable pdf format)
March/April 2001 - (downloadable pdf format)
- Preserving and Creating Vascular Access
- Pending Changes in Adult Parenteral Multivitiamins
- Lifeline Mailbox
January/February 2001 (downloadable pdf format)
November/December 2000
Part I - (downloadable pdf format)
Part II - (downloadable pdf format)
September/October 2000 - (downloadable pdf format)
July/August 2000
- Medicare PEN Issues 2000: Voice Your Concerns
- An Alternative to Narcotics?
- HomePEN When You're Twenty-Something
- Packet for Travel and Hospital Admissions
May/June 2000
March/April 2000
- New Options for Catheter Occlusion
- Not Another Memorial
- Blake's Story: A Tale of Faith and Endurance
- Income Tax Tips
January/February 2000
November/December 1999
September/October 1999
July/August 1999
May/June 1999
March/April 1999
January/February 1999
November/December 1998
- Home Parenteral Nutrition: The Consumer's Perspective
- Home Parenteral Nutrition: The Consumer's Perspective PDF version.
- The Whole Point of Health Insurance
September/October 1998
July/August 1998
- Thrombotic Catheter Occlusions and Related Complications
(See updated information on Alteplase) Article 1 and Article 2 - Consumer Input on Product Design Has Many Benefits
May/June 1998
March/April 1998
January/February 1998
- The Spirit of Oley Moves Clinicians, Consumers at 1998 ASPEN Clinical Congress (Includes Foundation Goals/Mission; Update on Growth Hormone & Glutamine; Reflections on 25 Years with HPN; and Lifeliners Educate Clinicians at '98 ASPEN
- From TPN to Transplant
- Fax Sheets From Social Security
November/December 1997
- Living with Home Enteral Nutrition: An Exploration of the Physical & Psycho-Social Issues
- Living with Home Enteral Nutrition: An Exploration of the Physical & Psycho-Social Issues - (downloadable pdf format)
- Free Housing for Families Needing Medical Care in New York City
- Feeding Workshops Offered
September/October 1997
- Oley Conference Discusses Ways to Cope When "There's An Elephant in Your Living Room"
- 1997 Oley Award Winners
July/August 1997
May/June 1997
- Gutsy Issues in Nutrition
- Breast Milk Works Wonders for TPN Child
- Free Medical Air Transport
- Book Addresses Living with Chronic Illness
- Time-saving Device for PICC Line Consumers
March/April 1997
January/February 1997
November/December 1996
Conference 1996 (July/Aug/Sept/Oct)
- Smooth Sailing at the 1996 Oley Conference
- Who Is Shaping Your Future on HPEN?
- Reflections on My First Conference
May/June 1996
- Nausea and Vomiting in HPN Consumers
- Caregiving Is Not Easy
- Potty Training A Child with Impaired Gastric Motility
March/April 1996
- Antibiotic Prophylaxis for TPNers Undergoing Dental and Other Procedures
- Oley Publishes Research on Cost-Benefit of HPEN Therapy
- Doctor's Orders: HMOs Can Sometimes Withold Vital Information from Patients
January/February 1996
November/December 1995
- Peristomal Skin Care
- Never Say Never
- Updates from Social Security
- Resources for Parents
- Reading Materials for HPEN Consumers of All Ages
September/October 1995
- Managed Care Issues Discussed at Oley Conference
- Two Experts Are Better Than One
- California Home Open to HomePEN Families
- Bright Ideas for HPEN Consumers
July/August 1995
May/June 1995
- Teamwork Helps HPNer Stay on the Go
- Controlling Diarrhea in Patients With Short Bowel Syndrome
- Oley president Celebrates 20 Years on Home TPN
- G-Tube Tid-bits
March/April 1995
- Prokinetic Drugs and Gastrointestinal Motility
- The Stuff That Dreams Are Made Of
- IN THE NEWS - Understanding Metabolic Bone Disease
- Europe on a Liter a Day .................(Additional Travel Articles)
- Home Health Care Costs 'Devastating' for Families
- Managed Care's Affect on Home Health Agencies
January/February 1995
- Learning to Travel with TPN
- Finding a Ray of Hope
- Health Care Reform: The Next Generation
- The Pharmacist's Role In Your Health Care
- Regional Conference Renews West Coast Consumers