XP Family Support Group
Organization URL(s)
www.xpfamilysupport.orgxpfamily@sbcglobal.net
Other Contact Information
8375 Folsom Blvd., Suite 201
Sacramento,
CA 95826
916-628-3814 (Voice, Sacramento)
949-218-9401 (Voice, Orange County)
Description
The Xeroderma Pigmentosum (XP) Family Support group exists to improve the quality of life of those persons with XP and other diagnosed UV light conditions. The XP Family Support Group raises funds to create awareness and educate the public about XP, research, gives grants for UV protective equipment and products, and assists families to attend an annual XP convention held once a year at various locations.
Online Resources
- What is Xeroderma Pigmentosum?
http://xpfamilysupport.com/joomla/index.php?option=com_content&task=view&id=24&Itemid=32