Hereditary Hemorrhagic Telangiectasia Foundation International, Incorporated - HHT
Organization URL(s)
hhtinfo@hht.orgwww.hht.org
Other Contact Information
P.O. Box 329
Monkton,
MD 21111
800-HHT-NETW (Voice - Toll-free, 448-6389)
410-357-9932 (Voice)
410-357-9931 (FAX)
Description
The Hereditary Hemorrhagic Telangiectasia Foundation was formed in 1990 to aid and support persons with HHT; to provide patients, families and doctors with educational information; to foster an exchange of information about the diagnosis and treatment of HHT between patients, physicians, researchers, genetic counselors, charitable organizations, government agencies, industry, academic institutions and the general public; to raise funds for genetic and clinical research and for sponsoring special scholarships for studies pertaining to HHT.
Online Resources
- What is Hereditary Hemorrhagic Telangiectasia (HHT)?
http://www.hht.org/about-hht/
Print Resources
The foundation publishes a tri-annual newsletter and "Learn More About HHT" fact sheet.