Children’s Brain Tumor Foundation - CBTF
Organization URL(s)
Info@cbtf.orgwww.cbtf.org/
Other Contact Information
274 Madison Avenue, Suite 1004
New York,
NY 10016
866-228-HOPE(4673) (Voice - Toll-free, Patient Support Line)
212-448-9494 (Voice)
212-448-1022 (FAX)
Description
This national non-profit organization was founded in 1988 by a group of dedicated parents, physicians and friends to improve the treatment, quality of life and the long-term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors. Over four million dollars have been given out for cutting edge research projects at leading medical institutions across the country. Support services include the Parent-to-Parent Network, telephone support groups, educational teleconferences and referrals to social services.
Online Resources
- Brain Tumor Support Groups
http://cbtf.org/cms/support_groups
Print Resources
"A Resource Guide for Parents of Children with Brain and Spinal Cord Tumors," 3rd edition, available in English and Spanish; "The Challenge," bi-annual newsletter; "Parker's Brain Storm," a book to help young children newly diagnosed with a brain or spinal cord tumor get a clear picture of what lies ahead as their treatment begins.