Acid Maltase Deficiency Association - AMDA
Organization URL(s)
tianrama@aol.comwww.amda-pompe.org/
Other Contact Information
P.O. Box 700248
San Antonio,
TX 78270-0248
210-494-6144 (Voice)
210-490-7161 (FAX)
Description
The AMDA, Acid Maltase Deficiency Association, was formed to assist in funding research and to promote public awareness of Acid Maltase Deficiency, a rare genetic disease. It is also known as Pompe's Disease.
Online Resources
- Acid Maltase Deficiency Association Home Page
http://www.amda-pompe.org
Print Resources
Patient Information Packet; Brochure; Newsletter. There are no charges for these publications.