Shwachman-Diamond Syndrome Foundation - SSS
Organization URL(s)
4sskids@shwachman-diamond.orgwww.shwachman-diamond.org
Other Contact Information
710 Brassie Drive
Grand Junction,
CO 81506
877-SDS-INTL (Voice - Toll-free)
614-939-2324 (Voice)
970-255-8293 (FAX)
Description
The Shwachman-Diamond Syndrome Foundation (formerly Shwachman-Diamond Syndrome International) is a non-profit group that operates on national and international levels. The purpose of the organization is to support families dealing with this rare disease, to advocate research, disseminate medical information and raise public awareness.
Online Resources
- Shwachman-Diamond Syndrome Foundation Home Page
http://www.shwachman-diamond.org/ - Shwachman-Diamond Syndrome: Disease Information
http://www.shwachman-diamond.org/understanding.htm
Print Resources
Books, pamphlets and periodicals/newsletters are available. Italian, Dutch and French language materials are also available. There is no charge for items.