Fanconi Anemia Research Fund, Inc.
Organization URL(s)
info@fanconi.orgwww.fanconi.org/
Other Contact Information
1801 Willamette Street
Suite 200
Eugene,
OR 97401
800-828-4891 (Voice - Toll-free, Family Support Services Line)
541-687-4658 (Voice)
541-687-0548 (FAX)
Description
Fanconi Anemia Research Fund, Inc., is a nonprofit corporation established in 1989. The purpose of the corporation is to assist Fanconi Anemia (FA) scientific research efforts. The Fund offers family services through the Fanconi Anemia Family Support Group and a biannual newsletter; an annual Family Symposium is conducted, which focuses on providing families and friends with information on diagnosis, treatment, and research efforts. FA is an autosomal recessive genetic disorder, which usually results in severe bone marrow failure.
Online Resources
- How is Fanconi Anemia Related to Leukemia and Other Cancers
http://www.fanconi.org/aboutfa/RelCancer.htm - How Is Fanconi Anemia Treated?
http://www.fanconi.org/aboutfa/Treatment.htm - What Is Fanconi Anemia And How Is It Diagnosed?
http://www.fanconi.org/aboutfa/AboutFAHead.htm
Print Resources
The Fund distributes educational materials on Fanconi Anemia. Serial publication: FA Family Newsletter (newsletter), semi-annual; Scientific Supplement, semi-annual; FA Handbook for Families and Their Physicians-general publication.