Sickle Cell Disease Association of America - SCDAA
Organization URL(s)
scdaa@sicklecelldisease.orgwww.sicklecelldisease.org/
Other Contact Information
16 S. Calvert Street
Suite 600
Baltimore,
MD 21202
800-421-8453 (Voice - Toll-free)
410-528-1555 (Voice)
410-528-1495 (FAX)
Description
The Sickle Cell Disease Association of America (SCDAA) was founded in 1971 to educate the public about sickle cell disease, identify carriers of the disease, promote the interests of sickle cell patients, and make recommendations for screening, treatment, and genetic counseling programs. The SCDAA provides program development consultation for its 86 affiliates, raises funds, conducts a national screening program, conducts public educational and staff training programs, and provides patient services and financial aid through its affiliates.
Online Resources
- Sickle Cell Disease Glossary
http://www.sicklecelldisease.org/about_scd/glossary.phtml
Print Resources
The SCDAA publishes fact sheets on sickle cell disease, visual aids, program manuals, books, a home study kit, films and slides, pamphlets, reprints of articles, and a sickle cell disease management guide for physicians.