Scleroderma Foundation - SF
Organization URL(s)
sfinfo@scleroderma.orgwww.scleroderma.org
Other Contact Information
300 Rosewood Dr., Suite 105
Danvers,
MA 01923
800-722-HOPE(4673) (Voice - Toll-free)
978-463-5843 (Voice, (8:30 a.m.–5:00 p.m. ET, Monday–Friday))
978-463-5809 (FAX)
Description
To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information. To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns. To stimulate and support research to improve and ultimately find the cause and cure of scleroderma and related diseases.
Online Resources
- If you have scleroderma... You need not to feel alone!
http://www.scleroderma.org/pdf/notaln.PDF - Juvenile Scleroderma
http://www.scleroderma.org/medical/juvenile.shtm - Localized Scleroderma
http://www.scleroderma.org/pdf/Medical_Brochures/Localized.pdf - Medication Information - Scleroderma Foundation
http://www.scleroderma.org/medical/medication.shtm - Pulmonary Hypertension
http://www.scleroderma.org/pdf/Medical_Brochures/Pulmonary.pdf - Scleroderma Support Groups
http://www.scleroderma.org/support.shtm - What is scleroderma?
http://www.scleroderma.org/medical/overview.shtm
Print Resources
The Foundation distributes numerous scleroderma books, specialized brochures, videos, and other information. Serial publication: Magazine, quarterly. Electronic Newsletter, Weekly.