The Children's Tumor Foundation - NNF
Organization URL(s)
info@ctf.orgwww.ctf.org
Other Contact Information
95 Pine Street, 16th Floor
New York,
NY 10005
800-323-7938 (Voice - Toll-free)
212-344-6633 (Voice)
212-747-0004 (FAX, 24 hours a day, 7 days a week)
Description
The Children's Tumor Foundation: Ending Neurofibromatosis Through Research (formerly known as the National Neurofibromatosis Foundation), provides neurofibromatosis patients and their families with information about the disorder and helps them in finding medical, social, and genetic counseling. The organization promotes and supports scientific research on the cause, prevention, and treatment of neurofibromatosis and acts as an information source for physicians and health workers in the field.
Online Resources
- About Schwannomatosis
http://www.ctf.org/pdf/brochures/schwanno.pdf - Find a Local Chapter: The Children's Tumor Foundation
http://www.ctf.org/How-You-Can-Help/find-a-local-chapter-or-affiliate.html - Patient Pamphlets: Neurofibromatosis
http://www.ctf.org/Living-with-NF/what-is-nf.html
Print Resources
The Foundation publishes an information booklet for patients and families, a question-and-answer pamphlet, an information booklet about the child with neurofibromatosis type 1 (NF1), an information booklet about the adolescent with NF1, and an information booklet about neurofibromatosis type 2 (NF2), Facing Neurofibromatosis: A Guide for Teens and Achieving in Spite of...A booklet on Learning Disabilities. Serial publication: Lay newsletter, quarterly; research newsletter, quarterly.