Joubert Syndrome Organizations

Joubert Syndrome Foundation & Related Cerebellar Disorders 2481 Orangewood Place Simi Valley, CA   93065 info@jsfrcd.org http://www.jsfrcd.org Tel: 805-527-1007	The Arc of the United States 1010 Wayne Avenue Suite 650 Silver Spring, MD   20910 Info@thearc.org http://www.thearc.org Tel: 301-565-3842 Fax: 301-565-3843 or -5342
National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT   06813-1968 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291