Porphyria
ALAD-Deficiency
Porphyria (ADP), Acute Intermittent Porphyria (AIP), Congenital Erythropoietic
Porphyria (CEP), Porphyria Cutanea Tarda (PCT), Hepatoerythropoietic Porphyria
(HEP), Hereditary Coproporphyria (HCP), Variegate Porphyria (VP), Erythropoietic
Protoporphyria (EPP) or Protoporphyria
- American
Porphyria Foundation (APF)
- P.O. Box 22712
Houston, Texas 77227
Phone: 713.266.9617
E-mail: porphyrus@aol.com
- Web page:www.porphyriafoundation.com/
Canadian
Porphyria Foundation
Box 1206
Neepawa, Manitoba, Canada R0J 1H0
Telephone: (204) 476-2800
Fax: (204) 476-2800
E-mail: porphyria@cpf-inc.ca
Web site: www.cpf-inc.ca/
American
Liver Foundation
1425 Pompton Avenue
Cedar Grove, NJ 07009
Phone: 1-800-223-0179
Also See:
- National
organizations many with information on porphyria
- Centre
Français des Porphyries (CFP), French Porphyria
Center
- Dermatology
Organizations, HealthWeb
- Erythropoietic
ProtoPorphyria, Dutch, German, English
- EPP
News, Brigham
and Women's Hospital, Boston, MA
- Iron
Overload Disease Association
- Painful
porphyrins, JL McDowell, American Chemical Society
- Porphyria,
American Liver Foundation
- Porphyria,
Neuromuscular, Washington University, St. Louis, MO
- Porphyria,
National Digestive Diseases Information Clearinghouse (NDDIC)
- Porphyria,
British Liver Trust Information Service
- Porphyria,
mall-net
- Porphyria:
A Patient's Guide,
MR Moore, Porphyria Research Unit, University of Queensland, NRCET, Australia,
acute porphyria, drug lists, diagnosis, management, therapy, other,
1999
- Porphyria
Cutanea Tarda, M Sachs
- Porphyria
Hub, Knowdeep
Database
- Porphyria
web links
- Porphyrinogens,
Porphyrins, and Porphyrias, NorDx
- Riksföreningen
mot Porfyrisjukdomar, Sweden
Revised
January 23, 2009
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