Welcome to Cooley's Anemia Foundation Welcome to the home of the Cooley's Anemia Foundation. This information is for patients and their families, medical personnel, donors, Foundation volunteers, and anyone interested in learning about Cooley's Anemia and other forms of the genetic blood disorder, thalassemia.
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Written by Craig Butler
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Wednesday, 06 May 2009 16:53 |
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May 6, 2009 - From CAF National Executive Director Gina Cioffi: As you know, clinical trials are vitally important steps in developing new therapies for thalassemia and its complications, as well as in advancing the search for a cure. Without clinical trials, there would be no chelators (oral or otherwise), no T2* measurements, no non-invasive liver iron measurements, or any of the many treatments and options that we rely on and take for granted. |
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Last Updated ( Wednesday, 06 May 2009 17:05 )
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Written by Craig Butler
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Wednesday, 06 May 2009 14:25 |
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May 6, 2009 - With the current recession, CAF’s Patient Incentive Awards are more valuable than ever. The Foundation is happy to announce that 25 thalassemia patients received a total of $29,500.00 in Patient Incentive Awards this year. |
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Last Updated ( Wednesday, 06 May 2009 17:17 )
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Written by Craig Butler
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Wednesday, 06 May 2009 13:31 |
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May 4, 2009 - Several people have contacted CAF asking if there are any special precautions that people with thalassemia need to consider in terms of the current swine flu situation. We forwarded this question to Dr. Ellis Neufeld, the Chair of the CAF Medical Advisory Board. |
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Last Updated ( Wednesday, 06 May 2009 13:42 )
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Written by Craig Butler
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Tuesday, 05 May 2009 17:52 |
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May 5, 2009 - Jennie Chieco, whose sister Michelle has thalassemia, has collaborated with a fellow student at Sacred Heart School in Greenwich, CT to hold the school’s first blood drive, according to an article in the May 5 Greenwich Post. |
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Last Updated ( Tuesday, 05 May 2009 18:16 )
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Written by Craig Butler
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Tuesday, 05 May 2009 18:35 |
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May 5, 2009 – Pediatrician Dr. Stuart Orkin, who is investigating the role of stem cells in the development of blood disorders and cancer, will be the featured speaker on Tuesday, May 12, at Student Research Day, the Yale School of Medicine's annual salute to the scientific studies that have been conducted by its physicians-in-training. |
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Last Updated ( Wednesday, 06 May 2009 17:15 )
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Written by Craig Butler
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Tuesday, 21 April 2009 18:48 |
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CAF was forwarded the following information from Focus Pointe Global and Paula Gottlieb Herman, both of which are looking for thalassemia patient to participate in market research studies in New York City the week of April 27. |
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Last Updated ( Wednesday, 22 April 2009 16:28 )
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Written by Craig Butler
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Monday, 27 April 2009 14:06 |
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April 27, 2009 - Homework's not so easy with Vikram around. |
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Last Updated ( Tuesday, 05 May 2009 18:40 )
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Written by Craig Butler
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Monday, 09 March 2009 18:07 |
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March 9, 2009 - The Cooley’s Anemia Foundation and the New York Academy of Sciences are pleased to announce that registration is open for the “Ninth Cooley’s Anemia Symposium,” scheduled for October 21-24, 2009 in New York City. (Click here for complete registration information.) |
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Last Updated ( Wednesday, 29 April 2009 14:58 )
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Written by Craig Butler
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Monday, 20 April 2009 19:01 |
April 20, 2009 - The Centers for Disease Control and Prevention (CDC) has announced a funding opportunity for a “Population-based Surveillance for Hemoglobinopathies” program. |
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Last Updated ( Monday, 20 April 2009 19:02 )
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Written by Craig Butler
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Tuesday, 31 March 2009 20:43 |
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March 31, 2009 – A recent study indicates that exercise performance may be affected by issues associated with thalassemia. |
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Last Updated ( Tuesday, 31 March 2009 20:44 )
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Written by Craig Butler
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Tuesday, 31 March 2009 19:56 |
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March 31, 2009 - HemaQuest Pharmaceuticals announced on March 28, 2009 that it has received two orphan medicinal product designations from the European Commission for its product HQK-1001 for the treatment of sickel cell disease and beta thalassemia. |
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Last Updated ( Tuesday, 31 March 2009 19:59 )
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