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Traumatic Brain Injury (TBI) ProgramOn this page: Background Recognizing the large number of individuals and families struggling to access appropriate and community-based services, Congress authorized the Federal TBI Program in the TBI Act of 1996 (PL 104-166). The TBI Act of 1996 launched an effort to conduct expanded studies and to establish innovative programs for TBI. It gave the Health Resources and Services Administration (HRSA) authority to establish a grant program for States to assist it in addressing the needs of individuals with TBI and their families. It also delegated responsibilities in the areas of research, prevention, and surveillance to the National Institutes of Health and the Centers for Disease Control and Prevention respectively. Title XIII of the Children's
Health Act of 2000 (PL 106-310) reauthorized the programs of the TBI Act
of 1996. The TBI Act reauthorization also recognized the importance of
protection and advocacy (P&A) services for individuals with TBI and
their families by authorizing HRSA to make grants to State P&A Systems.
The HRSA Maternal and Child Health Bureau administers the Federal TBI Program. The Fiscal Year 2008 appropriation was $8,910,000. Goals
Program
Vision What Does the Federal
TBI Program Do?
Between 1997 and 2007, 48 States, two Territories, plus the District of Columbia received at least one State agency grant. For 2008, 47 States, the District of Columbia and one Territory have received funding for Implementation Partnership grants. Grants
to Protection and Advocacy Systems: The P&A grant program is a
formula-based program that allows 57 States, Territories, and the Native
American Protection and Advocacy Project to assess their State P&A
Systems' responsiveness to TBI issues and provide advocacy support to
individuals with TBI and their families. Traumatic
Brain Injury Technical Assistance Center (TAC): The Federal TBI Program
supports a TBI TAC at the National Association of State Head Injury Administrators.
The TBI TAC was established to help States in the planning and development
of effective programs that improve access to health and other services
for individuals with TBI and their families. TBI TAC staff specialists
provide States with individualized technical assistance. Additionally,
the TBI TAC develops and disseminates a variety of specialized documents
and initiatives for the Federal TBI Program. For example, TBI TAC
has developed a set of benchmarks that can be used by grantees to assess
their progress in meeting Program goals and objectives. The TBI TAC is
also developing outcome measures that the Program will be able to use
to better assess the impact TBI State and P&A Grants have on person-centered
services and sustainable systems change. Collaboration: The Federal TBI Program provides for the collaboration and communication between and among governmental, professional, and private organizations representing leaders and policymakers concerned with TBI-related issues.
Why
is State Systems Change Important? 1
In the Children's Health Act of 2000, Congress recognized that the estimated
figure of 5.3 million Americans living withTBI-related disability is
an under-count. This figure is based on the number of individuals discharged
from a hospital following an overnight stay. This estimate fails to
capture individuals who are seen in emergency departments but not admitted
to hospitals, individuals who have visited physician's offices, or individuals
who have not sought treatment for a head injury.
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