Dystonia often impacts every aspect of a person’s life, and learning to live with dystonia can be a profound adjustment. Many people with dystonia describe the process of diagnosis and everyday coping as riding a rollercoaster with dramatic ups and downs. Despite the challenges of living with the disorder, members of the dystonia community are resilient, inspiring people.

Living successfully with dystonia is achievable. Over 30 years of serving the

dystonia community has revealed that the following “ingredients” contribute greatly to a person’s ability to live as well as possible:

• Seek out the best medical care. Start here to begin locating a physician.
  
• Educate yourself about dystonia and treatment options
  
• Develop a multi-layered support system of support groups, online resources, friends, and family. Seek out the services of mental health professionals, if needed.
  
• Investigate complementary therapies
  
• Get active within the dystonia community

• Receive individual assistance with accessing resources and creating your support network.