Welcome to Nevus Outreach, Inc.
Nevus Outreach, Inc. is a non-profit organization that was founded by families affected by Large Nevi and Neurocutaneous Melanocytosis (NCM) to offer support and information to others who are similarly affected, improve awareness and education of the condition, and encourage and sponsor research that will lead to effective treatments and a cure.
First Friday Update - May 1, 2009
Nevus Outreach, Inc. Executive Director Mark Beckwith writes a quick update on the first Friday of every month. Follow this link to the First Friday Update for May 2009 (more)
Poconos Gathering #2 - Swimming/Pizza/Bowling
March 20-22 was the date and Pennsylvania was the place! 51 people from 11 families gathered at the Split Rock Resort for a couple days of fun and good company. With swimming, pizza and bowling, what more could you ask for? This was the second time in as many years that people in the Northeast part of the USA, knit together by an unlikely congenital birth condition, organized themselves to get some quality time together. (more)
More Maps Added
The data just keeps coming! Thanks to Dr. Sven Krengel and his team in Germany, we are now able to publish new nevus maps of Austria, Germany and Switzerland! We have also mapped our dots in Mexico. It's amazing to think that only a few years ago, just about everyone on these maps thought they were the only one in the world (more)
Big Year for Nevus Science
2009 may well be remembered for a lot of reasons, and Nevus Science will move foward at an unprecedented pace this year. Like a snowball, Dr. A talks to Dr. B talks to Dr. C talks to Dr. D ... next thing you know, everyone wants to get involved with what we are doing (more)
Australia Map Added
I can say "G'day" because I used to work for an Australian company, Repco, as 2IC ("second in command" which is Australian [pronounced "strine"] for "Assistant Manager") of a company store. Now that we have my credentials in order, I am pleased to announce that the continent of Australia has been added as one of our (more)
Toll-Free Hot Line Restored
Here in the Nevus Outreach office, we have different ways to express frustration when things don't go right. Sometimes we might say we'd prefer being poked in the eye with a sharp stick, and other times we might say we feel like an (more)
Nevus Outreach Meets Endowment Goal
Nevus Outreach announces meeting the Endowment Challenge! In May 2008, the Bartlesville Community Foundation (BCF) accepted applications for their 2008 Endowment Challenge Grant Program. Nevus Outreach applied and was one of only five organizations approved for the program (more)
Families are Getting it Done
Shannon Ertner is getting it done. What is “IT”? She and her family are bringing in donations to support Nevus Outreach. For the past three years, she’s organized a fishing tournament through The Lady Bass Anglers of West Michigan, and an annual Easter Basket raffle. She’s raised over $6,200 to support nevus research. The tournament is called "Gracie & Friends Casting for a Cure.” This year it was held June 7, 2008 on Gull Lake in Kalamazoo, Michigan. There were fifteen boats (30 fishermen/women) and a special guest appearance by Professional Bass Angler, Kevin VanDamm. (more)
Neurocutaneous Melanocytosis MRI Update
In September we put our newly-forged research process with Dr. Barkovich at UC San Francisco to the test. This world expert on reading MRIs for NCM wrote the protocol on how to shoot the scans so today almost any MRI facility can scan for NCM. (more)
Please Update Your Contact Info!
A mobile society has its benefits, but please keep us informed when you move or change email addresses. (more)
Huge Growth for Nevus Outreach Support Group
When the new, improved Nevus Outreach website was launched in May of 2007, one of the benefits was a huge increase in traffic in the Nevus Outreach Support Group (more)
Nevus Neighborhood Access
There is a part of this web site that is accessible only to people who are affected by giant nevi. Nevus Outreach co-founder Kevin Williams envisioned a place within nevus.org where there would be content especially for people with nevi and their family members.
(more)One for the Record Books
The 2008 Nevus Conference is history. It was unprecedented in so many ways. Forgive us if it's taking a while to debrief it all
Nevus Outreach awarded Yard Sign and Banners
This week Nevus Outreach received a gift from the Harmon Foundation's "Need a Banner?" program. The Harmon Foundation of Tulsa, OK has donated over 2000 banners, yard signs and posters to Tulsa area nonprofit organizations over the past five years. (more)
Nevus Quilt on Tour
Sue Palmquist, former Board President and Nevus Outreach Volunteer, coordinated the first Nevus Outreach Quilt. The intention was for the quilt to be an ambassador for Nevus Outreach, raising awareness about Giant Nevi and Neurocutaneous Melanocytosis. Bring the quilt to your community
(more)A Nevus Outreach Founder Reminisces - 10 Years Later
On the occasion of our 10th Anniversary, we asked the founding families to reminisce about how Nevus Outreach was started so many years ago, and we received this wonderful note from Kathy Stewart (more)
