Publications

Publications Related to the CDC Epilepsy Program and Supported Research

2009

Bokhour BG, Pugh MJ, Rao JK, Avetisyan R, Berlowitz DR, Kazis LE. Identifying patient-centered indicators for quality epilepsy care. Med Care Res Rev 2009;66(2):147-166. abstract

Escoffery C, Yeager KA, McCarty F, Henry TR, Koganti A, et al. WebEase: development of a Web-based epilepsy self-management intervention. Prev Chronic Dis 2009; 6(1). html

Targeting Epilepsy— Improving the Lives of People with One of the Nation’s Most Common Neurological Conditions. At A Glance

2008

Benn EK, Hauser WA, Shih T, Leary L, Bagiella E, Dayan P, Green R, Andrews H, Thurman DJ, Hesdorffer DC. Estimating the incidence of first unprovoked seizure and newly diagnosed epilepsy in the low-income urban community of Northern Manhattan, New York City. Epilepsia 2008;49(8):1431-1439. abstract

Diiorio C, Escoffery C, McCarty F, Yeager KA, Henry TR, Koganti A, Reisinger EL, Wexler B. Evaluation of WebEase: an epilepsy self-management Web site. Health Educ Res 2008. [Epub ahead of print] abstract

Escoffery C, Diiorio C, Yeager KA, McCarty F, Robinson E, Reisinger E, Henry T, Koganti A. Use of computers and the Internet for health information by patients with epilepsy. Epilepsy Behavior 2008;12(1):109–14. abstract

Ferguson PL, Chiprich J, Smith G, Dong B, Wannamaker BB, Kobau R, Thurman DJ, Selassie AW. Prevalence of self-reported epilepsy, health care access, and health behaviors among adults in South Carolina. Epilepsy & Behavior 2008 Jun. 26. [Epub ahead of print]. abstract

Kobau R, Zahran H, Thurman DJ, Zack MM, Henry TR, Schachter SC, Price PH.
Epilepsy Surveillance Among Adults—19 States, Behavioral Risk Factor Surveillance System, 2005. MMWR 2008;57(No.SS-6):1—20. html pdf (PDF–900KB) [View the errata for this article here] 2008;57(32):876.

2007

Bambara JK, Griffith HR, Martin RC, Faught E, Wadley VG, Marson DC. Medical decision-making abilities in older adults with chronic partial epilepsy. Epilepsy Behavior 2007;10(1): 63–68. abstract

Hirtz D, Thurman DJ, Gwinn-Hardy K, Mohammed M, Chaudhuri AR, Zalutsky R. How common are the “common” neurological disorders? Neurology 2007;68(5):326–37. abstract

Kelvin EA, Hesdorffer DC, Bagiella E, Andrews H, Pedley TA, Shih TT, Leary L, Thurman DJ, Hauser WA.  Prevalence of self-reported epilepsy in a multiracial and multiethnic community in New York City.  Epilepsy Research 2007; 77(2-3):141-150. abstract

Kobau R, Zahran H, Grant D, Thurman DJ, Price PH, Zack MM. Prevalence of Active Epilepsy and Health-Related Quality of Life among Adults with Self-Reported Epilepsy in California: California Health Interview Survey, 2003. Epilepsia 2007; 48:1904–1913. abstract

Pramuka M, Hendrickson R, Zinski A, Van Cott AC. A psychosocial self-management program for epilepsy: A randomized pilot study in adults. Epilepsy Behavior 2007 Dec;11(4):533–45. Epub 2007 Sep 29 abstract

Pugh MJ, Berlowitz DR, Montouris G, Bokhour B, Cramer JA, et al. What constitutes high quality of care for adults with epilepsy? Neurology 2007;69:2020–2027. abstract

Vogtle LK, Martin RC, Foushee HR, Faught RE. A comparison of physicians' attitudes and beliefs regarding driving for persons with epilepsy. Epilepsy Behavior 2007;10(1) 55–62. abstract

2006

Austin JK, Carr DA, Hermann BP. Living Well II: a review of progress since 2003. Epilepsy Behav 2006;9(3):386-93. abstract

Caplin DA, Rao JK, Filloux F, Bale JF, van Orman C. Development of performance indicators for the primary care management of pediatric epilepsy: expert consensus recommendations based on the available evidence. Epilepsia 2006;47:2011–2019. abstract

Kobau R, DiIorio CA, Anderson LA, Price PH. Further validation and reliability testing of the Attitudes and Beliefs about Living with Epilepsy (ABLE) components of the CDC Epilepsy Program Instrument on Stigma. Epilepsy Behav 2006;8(3):552–559. Epub 2006. abstract

Kobau R, Gilliam F, Thurman DJ. Prevalence of self-reported epilepsy or seizure disorder, and its associations with depression and anxiety—results from the 2004 HealthStyles Survey. Epilepsia 2006. abstract

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2005

DeGiorgio C, Pietsch-Escueta S, Tsang V, Corral-Leyva G, Ng L, Medina MT, Astudillo S, Padilla N, Leyva P, Martinez L, Noh J, Levine M, del Villasenor R, Sorvillo F, Sero-prevalence of Taenia solium cysticercosis and Taenia solium taeniasis in California, USA. Acta Neurologica Scandinavica 2005; 111(2):84–88. abstract

Holden EW, Grossman E, Nguyen HT, Gunter MJ, Grebosky B, Von Worley A, Nelson L, Robinson S, Thurman DJ. Developing a computer algorithm to identify epilepsy cases in managed care organizations. Dis Manag 2005;8(1):1–14. abstract

Holden EW, Nguyen HT, Grossman E, Robinson S, Nelson LS, Gunter MJ, Von Worley A, Thurman DJ. Estimating prevalence, incidence, and disease-related mortality for patients with epilepsy in managed care organizations. Epilepsia 2005;46:311–319. abstract

Martin R, Griffith HR, Faught E, Gilliam F, Mackey M, Vogtle L. Cognitive functioning in community dwelling older adults with intractable partial epilepsy. Epilepsia 2005; 46(2):298–303. abstract

Martin R, Vogtle L, Gilliam F, Faught E. What are the concerns of older adults living with epilepsy? Epilepsy & Behavior 2005; 7:297–300. abstract

Prevalence of Epilepsy and Health-Related Quality of Life and Disability Among Adults with Epilepsy—South Carolina, 2003 and 2004. MMWR 2005;54(42):1080–1082.

Sirven JI, Lopez RA, Vazquez B, Van Haverbeke P. Que es la Epilepsia? Attitudes and knowledge of epilepsy by Spanish-speaking adults in the United States. Epilepsy and Behavior 2005;7:259–265. abstract

Strine TW, Kobau R, Chapman DP, Thurman DJ, Price PH, Balluz L. Psychological distress, comorbidities, and health behaviors among US adults with seizures: Results from the 2002 National Health Interview Survey. Epilepsia 2005 46(7):1133–1139. abstract

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2004

Ciechanowski P, Wagner E, Schmaling K, Schwartz S, Williams B, et al. Community-integrated home-based depression treatment in older adults: a randomized controlled trial. JAMA 2004;291(13):1569-77. abstract html pdf (PDF–190K)

DiIorio CA, Kobau R, Holden EW, Berkowitz JM, Kamin SL, Antonak RF, Austin JK, Baker GA, Bauman LJ, Gilliam F, Thurman DJ, Price PH. Developing a measure to assess attitudes toward epilepsy in the US population. Epilepsy and Behavior 2004;5:965–975. abstract

Kobau R, DiIiorio CA, Price PH, Thurman DJ, Martin LM, Ridings DL, Henry TR. Prevalence of epilepsy and health status of adults with epilepsy in Georgia and Tennessee: Behavioral Risk Factor Surveillance System, 2002. Epilepsy & Behavior 2004;5:358–366. abstract

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2003

Kobau R, Price PH. Knowledge of epilepsy and familiarity with this disorder in the U.S. population: results from the 2002 Health Styles Survey. Epilepsia 2003; 44(11):1449–1454. abstract

Martin R, Vogtle L, Gilliam F, Faught E. Health-related quality of life in seniors: What we know from clinical trials and directions for future research. Epilepsy & Behavior 2003;4:626–634. abstract

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2001

Health-related quality of life among persons with epilepsy—Texas, 1998. MMWR 2001;50(02):24–26, 35.

2001

Begley CE, Famulari M, Annegers JF, Lairson DR, Reynolds TF, Coan S, Dubinsky S, Newmark ME, Leibson C, So EL, Rocca WA. The cost of epilepsy in the United States: an estimate from population-based clinical and survey data. Epilepsia. 2000;41(3):342-351. abstract

1994

Prevalence of self-reported epilepsy—United States, 1986–1990. MMWR 1994;43:810–811.

Hospitalization for epilepsy—United States, 1988–1992. MMWR 1994;44(43):818–823.

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Reports

Neurological Disorders: Public Health Challenges (PDF–8.99M)
2007 World Health Organization Report.

Theodore WH, Spencer SS, Wiebe S, Langfitt JT, Ali A, Shafer PO, Berg AT, Vickrey BG. Epilepsy in North America: a report prepared under the auspices of the Global Campaign Against Epilepsy, the International Bureau for Epilepsy, the International League Against Epilepsy, and the World Health Organization. (PDF–318K) Epilepsia, 2006. Accessed 10/10/06.

Living Well with Epilepsy II (PDF–976K)
Report of the 2003 National Conference on Public Health and Epilepsy

Management of Treatment-Resistant Epilepsy
2003 Agency for Healthcare Research and Quality evidence report/technology assessment.

The Role of Public Health in Addressing Lower Prevalence Chronic Conditions: The Example of Epilepsy 2003 (PDF–1.03M)

GWU Purchasing Specifications—Services Related to Epilepsy
The George Washington University Center for Health Services Research and Policy, 2002.

Management of Newly Diagnosed Patients with Epilepsy: A Systematic Review of the Literature
An Agency for Healthcare Research and Quality evidence report/technology assessment, 2001.

Living Well with Epilepsy (PDF–371K)
Report on the 1997 National Conference on Public Health and Epilepsy.

Global Campaign against Epilepsy: Out of the Shadows
1997 Report Sponsored by the World Health Organization, International League Against Epilepsy and the International Bureau for Epilepsy

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